he barely listened to the other information about constant pulminary, air hunger, infections, coughing.
he got a sample inhaler and had me take a puff in,BREO INHALER, I FELT DIFFERENT INSTANTLY. TOLD HIM, HE JUST BLEW IT OFF.
SO HUSBAND AND I HAD TO RUSH ME HOME FOR OXYGEN. USUALLY USE 2 had to pump it to 3 1/2.,, it'sbeen a week and Im raspy,coughing and need to use air while up. NOT SOMETHING I DID BEFORE.
I READ FLYER AND CALLED MAKER. THEY SAID OF COURSE IT HAS STEROIDS.
I. CALLED HIS OFFICE LEFT A MESSAGE I WAS GIVEN WRONG MED., AND AM HAVING TROUBLE.
NURSE TOOK NOTE G,GAVE TO DOCTOR.
HOW BAD CAN THIS STUFF BE ON A PERSON,CAN I REVERSE IT SOME WAY?
What to do about doctor,,OH, HE CALLED ,PISSED I LEST MESSAGE WITH OFFICE.
SAID I WAS HIGH WHEN I SAW HIM, NO-way,was I.
He said I was lying because my pupils didn't respond usual when he had light that I followed.
He either said pupils were either large or small. ASKED IF I REMEMBER ANYTHING, I SAID THERE WAS NO_way I was high,. He called me a lier. I just said well I wasn't and that I had taken morning meds right up unil thirty minutes befor apptment and t hat's just 2 pills. So I asked if he remembered anything, cocidering the Steroids.
HIS RESPONSE WAS THAT WAS AN INHALER NOT A PILL.
I SAID BUT IT IS A STEROID EIRTHER WAY. NO COMMENT.
GO SEE AN ENT GET YOUR SINUSES TAKEN CARE OF. THEN WE'LL see what I could do for you...
like yah sure ,let me come back to you for added problems.
I told my CARDIOLOGIST about all this,,HE KNOWS THIS GUY.
HE SAID WITH WHAT's. GOING ON IN YOUR BRAIN MRI and MRA. your eyeys not being. perfect is not unusual, and beside that there are alot off reasons for it.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Yes, there likely variables (as with things your cardiologist has considered with "a lot" of things that can explain this. From similar experiences in my past:
Eyes
"pupils didn't respond usual when he had light that I followed." . . . "were either large or small." (end quotes)
1. Adrenal dysfunction
That's a sign of adrenal dysfunction, actually with the size of pupils not reacting as expected when a flashlight is shone on them.
2. Nystagmus: toxicity; magnesium deficiency
Eyes will also move differently (if referring to some kind of spasms or even inability to follow a visual path in a straight line with eyes) could also be nystagmus (common with lyme due to toxicity and also magnesium deficiency).
Some MDs may not know this, although most LLMDs and LL ND / naturopathic doctors will.
As nystagmus can be a sign of toxicity -- it may be misinterpreted, indeed, especially by those who are not lyme literate.
Nystagmus may also point to an inner ear issue, etc.
Still, it's hard to know exactly what they saw but this is just a guess.
If they took some blood for testing, ask now if they can run an INTRACELLULAR MAGNESIUM test on that. If low, this could correct your file notes on that matter. Or get that blood test today. You can't wait too long to clear your name on this. Low magnesium will defend the movement issue, anyway.
As to the light / adrenals, as for any kinds of blood or saliva testing ASAP to prove that your adrenals are off kilter (while finding the literature to present in this issue) . . . I'm just too tired to figure that one out but you've got a start with the clue. -
[ 07-06-2016, 01:48 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- My eyes cannot read all caps and are jumping all about. Hopefully, others can read this and reply to other aspects.
From what I can pick out, I get a sense that your body is rather agitated now from the steroid inhaler, though. I had a forced steroid inhaler / tricked actually after I said "no" to it decades ago.
So, I felt great there but really crashed when I got home and was exhausted but also my nervous system (and adrenals as I'd later learn to voice) was just so agitated.
I called a friend who knew lots about the body / CFS (as was our dx at that time) and she explained why there was no "antidote" and that my insistence that there must be a pill to reverse what the steroid inhaler had done to me - well, no such pill. Rest and taking care of myself and time was the key.
The ONLY thing that helped in addition to proper food was forced rest in the dark & quiet. I cannot stress how vital that is. If you have certain adrenal supports, some might be okay but some might also be too stimulating.
Best to talk with your LL doctor about what to do now. A naturopathic doctor is more likely to have a range of things to support but some LLMDs can help if they are integrative in their methods.
I'd hesitate actually suggesting anything specific other than ARNICA Homeopathic, though, no knowing all the variables. But assertive rest is key when adrenals suffer stress.
No caffeine, No TV, No music with a beat / rhythm - maybe dreamy music is okay, though even that can be too much sometimes. Dark & Quiet may not feel like your friend right now but they are required - and will help.
Water. Good food. Diaphragmatic breathing. Try to let go of all the foibles in that experience right now - don't mull it over with friends. Right now, that will just make your body worse. Focus on finding your peaceful place.
Other than that, a LL doctor who knows your case is best to advise. Focus on "what now" rather than re-hash the event. After your nervous system settles, you can then try to make sense of it and try to add an note to your file for clarification.
I can see how a doctor might misinterpret a lot and as for any trick for a steroid spray, they've never seen how sensitive a person with lyme really is.
This kind of doctor simply does not have the knowledge or skill and we just really need to avoid them.
take care -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- To calm adrenals from the inhaler experience:
In addition to ARNICA Homeopathic, sublingual . . . FISH OIL should be just fine to help calm & settle both your CNS & your adrenals right now. Sardines, too.
MAGNESIUM, three x day.
To calm cough and soothe esophagus & gut - and also help settle adrenal function:
DGL (Deglycyrrhizinated Licorice), chewable and hold to melt in your mouth.
Must be the DGL kind, not the regular as that would be far too stimulating & problematic with blood pressure. DGL is the kind to get. -
[ 07-06-2016, 01:56 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Btw - please type in upper and lower cases, because there are people on Lymenet who cannot read all caps due to neurological problems from Lyme. Thanks.
To change your text, click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
Posts: 8981 | From Illinois | Registered: May 2006
| IP: Logged |
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Have you been tested for cpn ?...babesia ..?...prayers are with you ..
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- makaka,
Hoping that you were able to get some rest - and are still in the position to be able to continue.
It occurs to me that you might be most concerned about the effect of nasal steroid spray on lyme. That may or may not be an issue but if you have a LLMD on board, at least it can be figured into your treatment now. It should not be too huge an issue in that regard if you are treating now.
While immune suppression with typical oral steroids or shots is usually the point . . . the other point is what steroids - for someone ill with various system dysfunctions -
even one puff of an inhaler - do regarding adrenal hormone "blast off" and that false sense of energy that can agitate to the max.
That's the part that is my biggest concern of the moment -- what I call the "zoom to the moon" this can do for adrenal function. It can take some time for that to wear off / settle down. Be sure to stay away from any events or venues that are in the least bit stimulating.
I'd not even go to a movie (sadly, though, they are usually sensory assaults to avoid), out to eat or even grocery shopping.
Take really good care of yourself so that your adrenals can recover from this. Staying off computer as much as you can, too, should help.
Adding to suggestions from yesterday: an hour before bed, a very low dose of melatonin. ONE mg. - unless you already use it. No more than 3 mg. an hour before bed. This can help the brain to settle down after a "zoom to the moon" hit.
If you work, of course, there would be additional things to work around. Just think of all your senses and energy required for any tasks. Minimize, delegate, ask friends for help with practical matters.
If my cautions seem extreme, it's because I've had this very thing happen to me. The rest directives are vital after such an experience. Yet, there have been others for whom a steroid inhaler did not send them to the moon. So you might recover more quickly than I.
Maybe pretend you are on a river trip and sometimes there are just whitewater rushes, sometimes calm stretches.
Take care. -
[ 07-07-2016, 05:51 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
I feel like I just failed because of being set back again after all these yearsfighting.
Posts: 66 | From Colorado | Registered: May 2016
| IP: Logged |
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Its not you or your fault ...cpn is short for Chlamydia pneumoniae, it is intercellular opportunitic coinfection most people have . Can really effect lungs like babesia
For the marcons ..a saline flush with silver ,grapeseefd extract and xylitol has worked for me ..it may be fungal too have you been treating with abx for all 8 yrs ?
Any chance you were reinfected , ? Mosquitos bites ,spider ? I am praying for you makaka
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
| IP: Logged |
posted
Makaka don't feel like you failed. You did not. Same exact thing happened to me by the uninformed doc I saw in the beginning of discovering what was up with me. Dropped the ball,gave me steroid spray and dismissed me as a mental case. Yah I felt like awful as well,went way down hill. Bottom line I found a heaven sent LLMD and years later I am getting well. I would recommend seeking a new guide,good luck.
Posts: 342 | From northern california | Registered: Dec 2010
| IP: Logged |
WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
this is so weired
Posts: 66 | From Colorado | Registered: May 2016
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Substance abuse test kits with police departments too often show false positives for certain drugs.
I just either read or saw a news report on that in the past month. I don't where nor recall what drug they were discussing, yet it's very troubling.
It could be that test kits for others might also be too prone to false positives. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
Commonly Prescribed Medications and Potential False-positive Urine Drug Screens
half-way down:
. . . False-positive UDS results for opiates also have been reported with the use of quinolones . . . .
. . . False-positive opiate results were reported with the EMIT II for three inpatients (therapeutic doses) and two volunteers (single dose) receiving ofloxacin: . . . .
. . . Rifampin is another antiinfective that may be used by medically under-served patients and was reported to be associated with false-positive UDS results. Three cases of false-positive opiate results with rifampin were reported.[36] . . . .
[MUCH more detail at link above. I just excerpted a couple things that popped out.]
Then, one next step (with others beyond that), many potentially informative hits with a search at Google for:
"Potential False-positive Urine Drug Screens"
then:
"False-positive Urine Drug Screens" -
[ 07-29-2016, 04:27 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- As you say you take "2oxy,a vicodin,or Percocet as needed."
be aware that each of those are very ototoxic. Sometime, liver support might help protect hearing and vestibular function, though there is no guarantee.
As they are also hard on the liver, though, be sure your liver support is tip-top. And also be sure your diet is full of bright, deep, rich colored veggies and low glycemic fruits that contain antioxidants.
And avoid harsh sounds. Even regular sounds can damage ears with taking ototoxic drugs. Be VERY protective of your ears.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic