posted
I am super sensitive to just about everything anymore. Lots of supplements, antifungals and most recently probiotics. I used to be able to tolerate 1 5-billion probiotic pill, but now I can't even tolerate that.
I used to be able to take olive leaf extract because I took it as part of my Lyme treatment, now I can't even tolerate 1/4 of a pill. I should mention that I no longer have Lyme, I am just treating yeast and have been trying to treat it for about 5 years now.
I try my best to break up capsules and go slowly hoping that by eventually treating I would build up some tolerance.
Most recently my probiotics started to really bother me, I get really painful bloating now with just a little bit of a capsule. It's making it really difficult to even treat myself anymore. I actually feel like I am getting sicker.
I have worked on detoxing and trying to heal leaky gut, but it just seems like a losing battle anymore. I don't know how I am ever supposed to get better.
Any opinions on what it is that makes us so sensitive?
Posts: 116 | From Upstate NY | Registered: Apr 2014
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Since probiotics now cause painful bloating, I wonder if you may have SIBO (small intestinal bacterial overgrowth).
I no longer have lyme--10 years for me. But, since having lyme, I have gotten what I believe is SIBO twice. I am getting over the second episode now.
By researching SIBO I learned that probiotics that contain prebiotics will cause the bloating and pain. I was certainly having that big time!
The wisdom is to eliminate probiotics and fiber (I was taking a fiber supplement nightly) and eliminate alcohol.
I did those things and I took Oregano Oil that I bought in a health food store. I took it twice daily and any time I got the bloating. It worked great on the bloating! And, I took kefir because I found that I could tolerate it.
It takes time to get rid of SIBO, but after about 6 weeks, I now no longer get bloating. I have added back in my probiotics successfully.
So, why not do some research on SIBO and try these things. They cost very little to try.
I believe that leaky gut makes people super sensitive to many things. You don't say what symptoms you get when you are not able to tolerate something, so I don't know if you get hives, bloating, or what. But, it is well worth it to work on leaky gut and SIBO.
If you have never gone to the Body Ecology website, I highly recommend it for those with systemic candida. The lady that created this site and diet suffered long and hard with candida but figured out how to cure it. She shares her knowledge with others.
If you try the Oregano Oil, I found that I could easily take it by putting some olive oil on a spoon and then putting 3 drops of the Oregano Oil in the olive oil. Then swallow and drink water after it. Otherwise, the OO is very strong and was burning my mouth and the smell was with me in my mouth all day.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
I will definitely look into the SIBO and check out the Body Ecology website. Thanks TF. I actually just got some Oregano Oil the other day and have not tried it yet.
The symptoms I get are, from probiotics....the bloating. That's interesting about the fiber because I have been slowly working on increasing my fiber supplement. I was taking it only a few times a week and have increased it to taking it daily now.
I am super sensitive to antifungals and experience die off from just tiny amounts of them, just an increase in symptoms, fatigue, body aches.
And just generally, without the probiotics I feel foggy and jittery, but it gets worse if I try and take any sort of supplement. I tried a little bit of Colostrum and felt really, really shaky and jittery from it.
Posts: 116 | From Upstate NY | Registered: Apr 2014
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Pebbles, a year ago, I was in the same boat. It helped me to eliminate additives from my diet completely. No more ingredients I can't pronounce (soy lecithin, guar gum, xanthan gum, carageenan, etc). This means I eat minimially processed or whole foods. We shop at Whole Foods. I barely eat out.
I also eliminated any personal care products with scents as well.
I think you are exactly right that detox is the issue. My LLMD and I are planning to start me on a methylation protocol because I know I don't detox very well.
Posts: 1737 | From Virginia | Registered: Aug 2011
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posted
I was hoping to get some more thoughts here as I am still dealing with this.
I still can not tolerate probiotics and in fact it is actually getting worse. I was able to tolerate about 1/4 of a probiotic pill every other day and now I have trouble with them even every 4-5 days.
I get extremely bloated and it's very painful to the point I can't even sleep.
The fact that it's getting worse makes me think it's leaky gut, but my ND wants to do a stool test which I do think will be helpful, but at the same time it's a lot of money.
So last year I had a leaky gut test and it showed a that I had a mild case of it. Well, I think that because I have been cleansing more yeast I have exposed more leaky gut and that is why the probiotics are bothering me more.
My Dr did an organix test and it came out positive for an Intestinal bacterial overgrowth. He then did the breath test and that came out negative, so I am really confused.
So now he wants me to do a stool test to try and figure out what is going on. Which I do think it could be helpful?!?! I guess it could be some other pathogen.
The reason I think it leaky gut is I have more tolerance to probiotics if I take them with food and the fact that it's gotten worse, how can that be a bacterial thing?? Would probiotics bother you with other types of bacteria.
Just for the record, all probiotics bother me, even the ones without FOS in them.
Thoughts here??
Posts: 116 | From Upstate NY | Registered: Apr 2014
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
I think histamines are at play and gut permiabilty has a lot to do with it ...when i did abx it cleared the path for giardia and ascaris to have their way..have you treated parasites ?
regular testing at gi doc was bs ...rife alinia ,tinidazole ,neem ,pyrantal pamoate ,clove wormwood black walnut ,i got a good doc if you need testing
Also probiotics from dairy but if i take a enzyme i can do krout ,goat kefir etc ...,leaky gut i thought was bs but i became allergic to spinich and chicken it can take 2 years to heal it .
all i did was brush my teeth in mexico a few years back..and many wells public sources have it
also not doubting your lyme is in remission but if you have critters then they may be carriers of borriella ...verify via microscopy
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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posted
Dr Josh Axe also has a good website on healing the gut. Guess you're going to need to play around with various approaches to see what you're going to respond to.
Posts: 13116 | From San Francisco | Registered: May 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I almost never do this, but I didn't read all of the responses above. (Please excuse me- headache!)
Wanted to say though that the FOS can be a problem, which you seem to know.
The other comment- from a LLMD confirming it...
When your immune system is overloaded the added "germs" in the probiotics can be too much for your body.
I am the same way as you described. Had to stop and I tried many products.
The only ones I can take are pearls (for the lower GI track) and American Health lozenges. They are both the right strength (amount) for me.
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
What makes us so sensitive?
I don't know THE answer, but I can guess some items below are, at least, partially responsible.
------------------------------------------- 1) I believe that is reason NUMBER 1: excess of toxins overwhelm the immune system.
Our organs cannot cope with cleansing so many toxins at once. We become then over-reactive.
Toxins: - from infections (biological debris of immune wars our body rages against pathogens) - from drugs we take (the body HAS to get rid of drugs) - from excessive die off herxes (when we add killers) - from food, air, clothes, cosmetics, water: toxins such as heavy metals, food preservatives, colorants, pesticides, fungicides, etc
toxins are in my opinion, the first culprit for messing our immune systems.
We get weakened to fight cancer, infections and immune reactions start to go after the wrong targets such as ...
... our own food, our own hormones (such as histamine, insulin), our own organs (such as cartilage in our joints), our most basic elements we need for survival and detox (such as sulphur).
Against pathogens? Nope. Our immune systems lose the ability to even RECOGNIZE pathogens and continue attacking the wrong targets.
Liver, kidney, lymph, gut: all get overwhelmed with toxins and cannot work properly.
So you get FURTHER problems to detox.
Is there anyone fighting chronic infections that have no problems with the liver once? If not yet, just wait. It's just a time bomb. -----------------------------------------------
2) leaky gut (due to infections, parasites, candida, food allergens, food intolerance, too much gluten, imbalanced diet, ...
... GMOs, pesticides and fungicides that kill good bacteria, toxins, ...
... especially glyphosate from Round up, that ALONE makes the whole flora a real mess).
Bad flora = allergies increase
Leaky gut is thought of being caused by food allergies (specially gluten). If one continues eating inflammatory foods, the whole body gets into that 'alarm' mode.
You may start reacting to things that, in normal conditions, you wouldn't.
Leaky gut = undigested big food molecules go into the blood stream = the body thinks this is bad (as it cannot use big molecules, only tiny molecules), so it attacks these molecules.
You get newly allergic to what you just ate.
Is there anyone fighting chronic lyme that have good working guts the whole time? Nope, I don't know anybody.
Bad gut health goes hand in hand with chronic lyme... -------------------------------------------------
3) lack of energy to perform any cellular activity properly: the mitochondria get defective, no way to detox cells, to nourish cells, to kill bacteria, we just go on sort of stand by for all living functions.
Add excessive electrosmog that just damage our most needed proteins which are the building blocks of life (HORMONES are made of proteins), well, we lose the essential building blocks that allow life to thrive.
Bad enzymes = cell life is barely possible.
How can our poor immune systems be still working properly, when all our cells are just NOT working on the most basic levels?
------------------------------------------------ These are just some thoughts.
It's not one reason, I think. It's the CUMULATIVE problems that ravage our immune systems. When my lyme is dormant like it is, for more than 7 years, I get much less 'new' allergies.
The moment it gets reactivated, I just wait a couple of weeks, and I'll start reacting to many foods I never had trouble with before.
I don't believe it is only lyme. I think it is because, without lyme, in my case, I can still cope with many stressors, but when I add lyme, my immune system goes into 'banana' mode. Posts: 6199 | From Brussels | Registered: Oct 2007
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posted
Thank you all so much for the wonderful responses. I have a lot of good thoughts and ideas here to go on.
I do have someone that I am working with who I think is good, he tested me for parasites and I tested negative, hopefully the stool test will tell me more. I have been taking some Oregano Oil. Maybe I will add in something for parasites.
The histamine idea is interesting and makes sense, but I have been treating leaky gut and my food reactions and chemical sensitivities have gotten much better. I will look into the Dr Axe website also.
I was also thinking about trying some sauerkraut or kefir to see if I could tolerate it better, I am just chicken...lol
Thanks again, I am going to go through all of your responses and read further to see if I can figure this out!!
Posts: 116 | From Upstate NY | Registered: Apr 2014
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posted
Don't forget that sauerkraut and kefir are very high in histamine. So if you do those, eat very small amounts.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
My doc told me that when we have infections, the immune system goes crazy and starts attacking everything.
You get less sensitive as the infection load goes down.
I found this to be true.
Avoiding triggers is also helpful.
Some antibiotics trigger me to be more sensitive, not a herx, it's an adverse drug reaction.
Avoid the fluoroquinolones (cipro, levaquin, avelox). They'll wreck your body.
Posts: 2839 | From California | Registered: Jul 2012
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
"So now he wants me to do a stool test to try and figure out what is going on. Which I do think it could be helpful?!?! I guess it could be some other pathogen."
If the sensitivities are mainly gut related, this can be very helpful.
Before I took a test like this, I could only eat very few foods and my stomach was a mess. No amount of supplements or probiotics helped.
I thought it was allergies, but it wasn't. You will get some very helpful info on that test.
Probiotics do nothing if you have a pathogen in there already taking up the real estate. I like your doctor's thinking.
Posts: 2839 | From California | Registered: Jul 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The liver is also very much involved in many of the things - food, medicine, herbs and even environment. If the liver is stressed, all bets are off and chaos can come to clobber in unexpected ways. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Lymetoo....I will definitely start out slowly!!
Judie, thanks for the reply. It makes me feel better about having the test, I was a little skeptical but I am on board now. Just not looking forward to actually doing it...lol
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Oral b vitamins can make gut bugs ,helminith stronger...,said parasite guy ...most stool test are bunk especially quest labcorp.. i did a genova and it missed giardia and ascaris ..both of which really comprimise the gut lining
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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I also am very sensitive to antifungals,herx very easy and severe
Ive been taking nystatin now for about 6 weeks and at best I can take one pill a day or I hers to bad.
Are you herxing when you take probiotics and antifungals?
Posts: 227 | From fairhaven ma | Registered: May 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Nerve endings, when they have been infected, can also be irritated, inflamed and sensitive for a long time.
Myelin sheath, when it becomes compromised as well can short circuit signals in ways like static electricity on cold, dry winter mornings when trying to get out of a nylon bathroom after walking across carpet in smooth slippers.
Or like Gene Wilder's hair. Only that's the effect I get under my scalp! -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
bluelyme.....I don't do any oral B's and I agree about the testing. Even with a Dr who understands all this, the organix test I did tested positive for an intestinal bacteria but then the breath test came up negative....so frustrating!!
Thanks Lymetoo, I will check them out.
Shoeless Joe.....the probiotics cause me such major bloating and pain I can't even sleep. From just a small amount. I even get a fever too, it's awful!! No herxing though.
The antifungals cause herxing. I only take a small amount every 4 days. Any more than that and I am just too tired and achy. But hey, it's better then nothing and it's some progress!!
Posts: 116 | From Upstate NY | Registered: Apr 2014
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- you say: " . . . did tested positive for an intestinal bacteria but then the breath test came up negative . . . "
That's a positive test, then, trust the first result as if it shows something, that is there. The breath test is not very reliable.
I don't trust breath tests for infections. Just does not make sense to me that they could be definitive when they just don't register. All the beer foam I burp up could surely confuse it! *
(* nah)
Posts: 48021 | From Tree House | Registered: Jul 2007
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Funny keebs...i agree try some wormwood ,neem,mastic gum,slippery elm, restore, aloe ,pyrantyl pamotate, clove ,black Walnut ,fire tree bark ,sfx722, ole. Just ideas
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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posted
I agree to Keebler and bluelyme, I have actually added in some Oil of Oregano.
Posts: 116 | From Upstate NY | Registered: Apr 2014
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