posted
I am preparing for my LLMD visit next week. I am working on trying to figure out how to word my symptoms, or if they even are symptoms. Can anyone shed light on to these, or have also experienced them?
(The appointment I'm going to will be to go over my test results, it is only my 2nd appt with the LLMD. All I know now is that per Igenex, I am positive for lyme.)
I have a lot of "regular" lyme symptoms. My test results reflect that I've had lyme MUCH longer than I thought, so I'm going through and trying to recognize other things I thought as" normal" that may actually be symptoms I didn't recognize.
Just trying to be prepared as possible for my appointment.
1. I get this "pressure" on my lower middle forehead, like between my eyes. I don't know if I would describe this as a problem with my head, like a headache, or an eye problem.
Things are maybe SLIGHTLY blurry, and there is a lot of pressure there, like a headache but different from a headache. This bothers me a lot at work on the computer.
2. My feet fall asleep very easily, if I prop them up or tuck them under my feet?
3. When I FIRST get up in the morning ,my first few steps are always really stiff. My feet don't necessarily hurt- but it's like my bones have to readjust to carrying my weight or something.
I've read stuff on here about the bottoms of your feet hurting in the morning due to co-infections? Has anyone experienced this but not in extreme pain, just stiffness?
4. I woke up this morning to find 4 small red dots on my abdomen. Is this lyme related or did I just get 4 weird small bug bites?
5. I bump into stuff ALOT. (Edges or desks, rails, doorways) It's like I don't know my own size.
(breaking this up for easier reading for many here)
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Your numbering approach / list really helps. My replies are not in order as I just started with the ones that called to me first.
"4. I woke up this morning to find 4 small red dots on my abdomen. Is this lyme related or did I just get 4 weird small bug bites?"
Who knows. One of many kinds of things that are in the grab bag of symptoms. Satellite rashes can appear at anytime for lyme, though.
Take PHOTOS to show doctor. Consider recent vector exposure - &/or personal care products, as well as fabric and fabric soaps, chemical coatings.
"5. I bump into stuff ALOT. (Edges or desks, rails, doorways) It's like I don't know my own size."
Do you also not quite make it through a doorway and are always surprised when a whole third of your body - a shoulder and arm - are stopped by the door jam? If so, that's pretty typical, too.
Your doctor really needs to know this. Yet, it will be no surprise at all.
Vestibular issues are very common with lyme as well as brain / neuro coordination matters. Detail here explains how the inner ear is very much connected to balance and the inner ear is always affected by lyme, always.
Ginger Capsules or Vinpocetine
may be of help as might liver support [along with direct and assertively addressing any tick borne infection that may be on board). Detail about how this happens and what can help along the way is here:
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
[ 09-26-2016, 05:02 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- "2. My feet fall asleep very easily, if I prop them up or tuck them under my feet?"
If you elevate your lower legs, be sure body mechanics are in alignment. Sorry to say but they should never be tucked under your legs. Open pathway for circulation is vital at all times.
Still, of course mention this as it also seems to happen when you prop them up, so check the alignment and if it's okay, the doctor should know this.
Still, it can go with lyme - as can all those in your list.
#1. vision / head pressure
do mention, of course. And be sure to check your body mechanics that your neck / back are always in good alignment (hardy har-har, I know, if fatigue is on the table, yet it's a consideration so figure out a good chair, take breaks, eye exercises, eye rest, etc.).
Inflammation is often involved. That goes with lyme and also from certain foods, environmental exposures. A diet free of gluten, dairy and corn often helps and be sure to ask your doctor what else you can do to ease inflammation such as taking TURMERIC, etc. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- And, actually even having trouble "Articulating Symptoms" is something that will help your doctor.
You likely could just do 3 or 4 words and not explain the situations and they will know exactly what you mean as so many very unique symptoms are really very common with lyme.
Re: Objects - Body - Collisions - Often
or have some fun:
Door Jams - Move - Often as I start to walk through
Furniture - Appears Out of nowhere - Often Bumps into me
Body - Lost in Space
[Just never try to add humor if the doctor is a psychiatrist, though
- or even a sleep specialist. They took my attempt at similar humor seriously and said I was having obsessive furniture hallucinations.]
It might be easier for you to use template of sorts: Nouns - Verb - degree / frequency
Word Finding -- Many with lyme have all kinds of trouble even articulating how to order an omelet for breakfast - or ordering an "envelope". The articulation thing will get better with treatment.
The toxicity & inflammation of lyme can scramble word finding ability. And the inner ear issues also really short circuit our concentration and communication is actually incredible complex so just roll with it for now. -
[ 09-26-2016, 05:27 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I run into doorjams so often that I'm legitimately embarrassed. Honestly, sounds dramatic but I just feel so stupid when I do it!
Thanks for the time you've taken to respond, it's really helpful to learn more and figure our what I need to communicate to my doctor!!!
Posts: 9 | From Marietta | Registered: Jan 2016
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me
Frequent Contributor (1K+ posts)
Member # 45475
posted
Mass wag, Ggod job prepping for your appointment. One thing I always do is let my LLMD know the severity of symptoms and the most bothersome symptoms.
P. S. I run into things all the time. Desks, walls, door frames. I end up with lots of bruises.
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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posted
I suggest mentioning anything that's got your attention and let the doctor sort it out with you.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
Bumping into things is classic Lyme. I still occasionally find myself catching my shoulder on a doorway as I walk through.
A couple of months ago, I suffered for a month from a rash that began with four raised, pustules on my abdomen, which, after they had developed fully, became very itchy. Whatever you do, don't scratch them and break the skin because then they turn into a larger and larger rash and the bigger they are, the harder they are to get rid of.
It's a Bartonella rash, sometimes ACA. I took Pregnenolone and used the strongest Desitin I could find on it. Desitin will take the itching away. They were so hard to get rid of that I went to my doctor and got a prescription for a steroid cream which I used sparingly at the end
even though I know steroids will weaken the immune system and are a big No, No for people with Lyme.
Posts: 653 | From Northern Virginia | Registered: Oct 2014
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posted
Oh, and, the swelling on the bottom of the feet is from Bartonella. When that happens to me, I know I've been slacking off on my Bart herbs and increase
the amount of Japanese Knotweed and Houyttenia that I take and then it goes away. The same thing is true of feet hurting or feeling like they are freezing cold - I increase Japanese Knotweed and Houyttenia.
But this an herbal fix. Your LLMD will probably put you on abx which will make it all go away very quickly.
Posts: 653 | From Northern Virginia | Registered: Oct 2014
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