posted
Just to be clear, I am not advocating not taking prednisone...just suggesting something to help break up mucus.
Posts: 764 | From Northwest | Registered: Sep 2014
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Misery is not enough of a reason to take steroids. There are many ways to break up congestion. So many good ways.
IF a life-threatening (or vision threatening) emergency and IF adequate comprehensive approaches to treating lyme or other chronic stealth infection are first on board, only then, and if guided by an excellent LLMD beforehand.
Topic: what do STEROIDS actually do to those with lyme? Risks, long term damage discussed. Links. .
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Allicin capsules and a sea salt / xylitol spray can work wonders. Within five minutes of taking a good allicin capsule, the sinuses should start to breathe easier.
Turmeric capsules, turmeric in foods, also good to help address inflammation (but from a reliable source as many cheaper brands can contain lead).
Avoiding gluten, dairy and corn also key. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
agree. being miserable is not worth taking them.
called my sister and got the old, well five days are not going to kill you. only long term steroids do damage. it's only 20 mg...yada yada yada.
but I said yeah well how come a flu shot puts me down for months? steroids suppress the immune system and I dont need that.
like talking to a brick wall. well he's the doctor. why go if you wont take the medicine.
I wonder why i bother...I think even one dose at 20 mg can still do damage.
people who don't have lyme just refuse to listen.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
posted
It all depends upon whether or not you are able to breathe.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
my nose is completely blocked. I feel pressure in the upper chest and very short of breath. eyes, teeth, face, ears, hurt.
last night I woke up because I felt like I was strangling and trying to breath.
I sat up and was able to calm down. heart was racing and I was dizzy and nauseous plus diahrrea.
I used an afrin nasal spray this morning and,was able to walk my mile. took it very slow.
I have gained alot of weight recently.
I wonder if I cut it in half, say 10 mg, if it would be ok?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Wheezing in your lungs I s why you need the short course of steroids. It will decrease inflammation in the airways.
Afrin cannot do this. Mucinex works on nasal congestion also but not the lungs.
Albuterol is a bronchodilator, NOT a steroid, it opens the airways.
You need both steroids and albuterol to breathe better and stop the wheezing.
Also, reducing dosage of the steroids would not help you, they would simply not work.
Posts: 5237 | From here | Registered: Nov 2007
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
rats. I'm just really afraid of steroids.
I've never heard of anybody with lyme taking steroids that didn't have some kind of problem, either immediately or later, some even long term.
I know 20 mg for five days is probably low dose but still its a steroid
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
It would be best to rest the body until the wheezing is gone.
Physical exertion, like walking a mile, while not being able to breathe well can put extra strain on the heart.
The body is not a machine.
Posts: 5237 | From here | Registered: Nov 2007
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
he said it was ok as long as I took the inhaler 20 minutes before.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Sorry friend, I know that it is scary. Wheezing is just not a good symptom to ignore.
If it comforts you, I had a high dose steroid shot a year ago. ( I had also been newly reinfected with Lyme!) Thankfully, the shot did not seem to change my course for the worse. As you do now, I then really needed the steroids to decrease dangerous inflammation.
Posts: 5237 | From here | Registered: Nov 2007
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I'm just scared, no, terrified of steroids.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
posted
randi .. It's the steroid shots that are the worst .. it's a large dose.
I agree with sammy that walking is not a good idea until you get this under control, especially since it's ragweed season. If you insist on walking, then make it a slow stroll.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I'm so slow it takes over half an hour to do a mile. people pass me twice!!!!
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
posted
That sounds pretty good. I used to do a mile in 20 min and it was a fairly fast clip.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
If you're taking abx AND prednisone it shouldn't be a problem. Even Burrascano says this. And there are a few LLMDs out there who've prescribed it with treatment because there was just no other way.
Gotta breathe to walk.
Posts: 2057 | From Florida | Registered: Feb 2015
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
my doc said mild, which is what I'm doing, is good for the lungs. he says I have to expand them.
my sister has severe ra and it seems she's been on steroids for years. she looks awful. already had knees replaced.
I know sometimes you must have them so I've avoided them for at least 25 years.
but if something bad happens it will be to me.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Doses of steroids and other immunosuppressants for RA are very high and long term.
Your temporary dose is so small, they just don't compare.
You could be feeling better by now if you had started the whole med combo yesterday.
Posts: 5237 | From here | Registered: Nov 2007
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
jus depressed. I'm so sick and tired of being sick.
jus to have one good day would be a blessing. I can't complain tho, others have it much worse.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic