posted
Is mHBOT ok to use if you have a CBS mutation/upregulation (plus BHMT mutations) that has led to sulfur intolerance and sluggish phase II liver detox?
IV Glutathione (also Bactrim, milk thistle, DSMO, DMPS, high sulfur foods) made me feel much worse, so at least now I know why (CBS). Doesn’t mHBOT increase glutathione production? If so, shouldn’t I hold off on trying mHBOT until I am further along in treating CBS mutation (just started molybdenum glycinate) and liver detox (starting castor oil for now)?
A little history --
Bullseye 2010, diagnosed lyme/bart 2011 by PCP (although most likely bitten 1st time 30 yrs ago), diagnosed clinically w/babesia by LLMD 2014.
I’ve been on combination Rx abx as well as few natural ones for much of the last 6 years (one year break), initially w/PCP then with LLMD, both attempting to follow Burrascano guidelines, but having to try other combos/alternatives because of my inability to tolerate so many abx. I also refuse IV abx as well as some orals with serious potential side effects (like Levaquin/Cipro).
To this day I have not been able to tolerate the “right” combination of antibiotics at the right doses for the right length of time, so although I have treated for a long time, I have essentially undertreated in my opinion. Just did Advanced Labs lyme culture test, waiting on results.
I finally gave up on using long term Rx abx last year once my GI symptoms got worse--have SIBO/dysbiosis, now leaky gut (starting L-Glutamine powder), possibly gastroparesis—thanks lyme/bart (having GI workup). No doubt all the Rx abx are partly to blame.
May have ANS testing for vagus nerve. Cardiologist I saw last year for chest pain, palps, SOB felt vagus nerve could be reason for heart and GI symptoms. Now seeing GI doc who thinks probable motility issue (so vagus nerve).
My diet is so limited there are barely any foods left: gluten-free & dairy-free (both pre-lyme diagnosis), now egg-free, sugar-free, low histamine (mast cell activation), low FODMAP (SIBO), now low sulfur…it’s ridiculous! How I’ve gained 30 pounds in the last 6 years I do not know ☹ I know many of you can relate.
I ’ve been working w/excellent lyme literate herbalist to help get on core Buhner protocol for all 3 infections. But unfortunately I’m also having trouble even tolerating many of the detox/support herbs needed before getting to core protocols/killing infections (other than cryptolepis which I seem to tolerate and have been on since 2015).
My gut just can’t tolerate so many things. And I’m fed up with so many pills, tinctures, etc. making me feel so much worse (way more than just GI symptoms). I need to simplify my treatment plan.
So I’m stuck....Needing to heal my gut and address CBS and liver detox, but also treat infections as naturally as possible. I’m considering one or more of the following: mHBOT, UBI/UVLRx, RIFE, hopefully some more herbs eventually.
Can someone tell me whether or not it’s ok to use mHBOT with CBS upregulation since increasing glutathione has made me feel worse? Should I treat the CBS mutation/liver detox for a certain length of time first? How long?
I’m trying to decide whether or not I should try my first mHBOT session yet (20 minutes max with no supplemental 02). I’m claustrophobic but need to just get over it. My PCP has an Oxyhealth Vitaeris that I can try for $100/session, or can rent for $1,200/month, which is better than buying my own right away. He also offers UBI treatments, and has one chronic lyme/bart patient who improved a lot with a combo of mHBOT and UBI. There is also a local doctor (not mine) who has the new UVLRx but I don’t really want to add yet another doctor to the list.
I appreciate any advice. Thanks.
Posts: 26 | From Pennsylvania | Registered: Apr 2011
| IP: Logged |
posted
Hi kah419- I can't answer your main question but in regards to tolerating antibiotic combinations- did you ever have a Detoxigenomic test done? It screens what drugs one can detox.
Could be that some of them were sulphur based?
That test sure was handy when pharmaceuticals were used. It even has herbs that could be problematic to detox.
Posts: 764 | From Northwest | Registered: Sep 2014
| IP: Logged |
posted
Hi kah419: you've been through it. I'm sorry! I cannot answer your question but if you post it to the mhbot thread- we are on page 24 now, I bet someone like Phoiph can find out. Godspeed!
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
posted
Thank you everyone for your replies and suggestions. I will re-post in the mHBOT thread and also PM Phoip.
Lookup I have heard of Restore, but unfortunately can't take it because it contains sulfur. I have done 23andme but have never heard of that other test you mentioned. I will definitely look into it. Thank you!
Posts: 26 | From Pennsylvania | Registered: Apr 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic