posted
Jackie- it's good you asked. It is my understanding that pulsing is not recommended for confections. My first LLMD did that with me and it was not successful, left me sicker and it was particularly bad for babesia.
Is your doc in DC? If so, I think I may have had your doc as well. I think if coinfections are not a big part of the picture- you may be able to get away with it. I could not. I had to hit Babs and Bart hard until they were pretty much resolved. Wish I had asked this question much earlier on.
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
posted
No My dr is not in DC. Is your Bart resolved? What medications did you take for it and how long did it take to feel better?
Posts: 574 | From Out there somewhere | Registered: Jul 2010
| IP: Logged |
posted
Pm me Jackie- are you able to get to a new doc? I don't remember all the exact specifics but it was done expertly. Thanks
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
posted
By all means Jackie I am not trying to sway you. I am just saying there are others out there that do not pulse coinfection treatment. I am passionate about it because it cost me A LOT of money as I did not have coverage at that point and I was having to by Mepron out of pocket at the tune of $3,000.00 a bottle. That is what had me look for another doc. Especially when I was getting worse by the day. The Bart was treated with the standard drugs one hears about just in very solid combinations. I don't have all of that info. As quite frankly at the time I wasn't thinking that clearly and I depended on my LLMD and his staff. Wishing you great success!
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
posted
Your mb is full Jackie. I went to Germany in 2012 right after 2 years with Dr.H and have not been on abx since. I was crashing everytime he tried to pull me prior to Germany so that is why I went. It was a great move I believe. From there I've done herbs under Dr.H's supervision, rife with a prac. in NC(very helpful) and now mhbot as the Rife has not gotten me to remission as I'd hoped. Is the Bart gone- yes, I'm relatively sure as I could barely walk when I got to Dr. H. The foot pain was unbearable. I had neuropathy too and he took care of it all. I'm self supporting and run two businesses so I had no choice but to get to the best and get better. I am grateful to all those on lymenet that helped me get to Dr. H- TF,Katrina and SixGoofy and to Germany- SixGoofy and 17 Hens. I'm not sure where I'd be now if I hadn't listened and had wise counsel. I am VERY VERY grateful. Godspeed to you!
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
posted
We just started three weeks on and two weeks on. Just felt symptoms starting a couple of days prior to start of antibiotic pulse. So that was timed perfectly. I don't agree with two weeks off. Bb has about a 30 day cycle from growth to growth with senescence in the middle; you don't want when you are treating to line up with senescence. Thus, one should not be 180 degrees out of phase. Three weeks allows more time for antibiotics to leave system, key for persisters to come out of hiding and means a counter cycle can not be set up. Been on straight for antibiotics for a long time and improved tremendously. The pulsing is now to get rid of persisters.
posted
Thanks, Bob, for your contribution here. I have heard of pulsing for persisters for lyme and that is fairly commonplace to my knowledge (after treatment, I think it is in Dr. B's protocol as well). I honestly don't know enough about pulsing but I an tell you for me with Babesia-- it was a very bad move. Bart too for that matter. When I say I could barely walk, I am not kidding. I was having to mail overnight supplies for my trip to NY as I could not push them on my way home. It is a time I try to forget. I would say, whatever treatment plan you are on, know the rationale and if it isn't working, ask questions. Bob, you seem super knowledgeable. Glad things are going well for you!
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
posted
@willbeatthis, sorry to hear that. Sounds like when you stop, symptoms return very quickly. Tested positive for Bart and Babs as some point, but never had really high titers. Back was the best indicator for Bart. Had red streaks and these eventually improved to where they are not noticeable anymore. Part of decision to pulse was the belief that Bart and Babs were under control and thinking it was time to let immune system finish those off if anything remained (good for immune system to get a break). Yes, have done a lot of reading and my current protocol is based on Lewis' research at Northeastern and Zhang at Hopkins. Dr. is willing to try new things as long as fairly close to the sphere of their prior protocols and have scientific basis. Posts: 360 | From Massachusetts | Registered: Dec 2012
| IP: Logged |
posted
Good for you Bob for being your own advocate! I would say Dr. H's treatment of my Bart and Babs was very successful. I remember being amazed by the tricks he had up his sleeve after so many years of treating it. I was desparate at that point and could barely walk. He did eventually pull everything but I went to Germany and photons I believe kept me from relapsing. No doubt you have to be the captain of your own ship! Kudos to you and Godspeed!
Posts: 859 | From Southeast | Registered: Mar 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic