posted
I have herxes before but never have had burning like this before. It is painful.. I noticed it today after I took my morning supplements. Hmm I am going to look later at these.
Posts: 153 | From Tampa | Registered: Jul 2013
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- On skin? In fibrous tissue? In your belly?
Esophagus?
Since you did not specify, sorry, but my puzzle solver just went to town with the various possibilities.
I would stop all CURRENT supplements for a couple of days. If you are taking andrographis and you have any skin discomfort, stop that for sure as for some it can do that.
It could be that it's not so much supplements doing this but you aren't getting the right supplement or it's time to SWITCH / rotate as some sort of can quit working for you.
Though it could be your Rx doing this. Can you stop all Rx for a day or two (talk with your doctor).
In the manufacturer Rx outline for each Rx, check your symptom but then also take it outside, so to speak and cross reference each Rx in a web search for patient accounts.
Could be a pH issues. Chlorella might be good for that. Even a little baking soda in water can help, too, to calm down over acidity. -
[ 06-05-2017, 01:59 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You're not taking doxycycline and getting sun exposure, I assume? Even bounced light or through a window can burn skin terribly in a chemical reaction way.
If your skin, there may be other photo reactions going on, too. And if the liver is stressed and IF porphyria might be involved or even elevated porphrins, skin can burn.
Dandelion is a milder liver support than, say, Milk Thistle. Other rotation options:
See post: Caution: Aspartate; Glutamine; and Phenylalanine (3 excitatory amino acids that can be wrong for us when added as supplements, beyond a normal dietary level)
Seaweed has its own natural MSG and can be very excitatory
Topic: MAGNESIUM - Informational Links set -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You started Tinidazole April 4 along with IV Rocephin.
Are you still taking both? Tinidazole can cause some nerve issues.
And, you state that you have Bartonella and have just started treatment for that. Bart alone can cause all kinds of burning. I found andrographis working up to top dose to soothe that very nicely.
Whatever treatment for your Bart, you might ask your LLMD if backing down on dose might help. Burning to such a degree - regardless of where - has got to be counterproductive.
Something has to be done to calm that down so you can tolerate treatment. It is possible. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
thanks eveyone. I am taking Levaquin dauky 500 with Riampfin (pulsing) and tindemaz daily. Had lyme since 2001/ positive tests in 2001 and 2002. Neuro lyme started in 2008. did vancomycin with fantastic results. No symptoms for 4 years. big for me. came back in 2012. did vanco again for 3 weeks and it was pulled because of pic line issues, but big improvement. This year in january noticed the tingling / twitching in legs (always starts there) and went ot new Dr as mine retired. Gave me roceph/vibatin and allenia. After 2 weeks thoughIwas going to die! Not a llmd. found fellow in Orlando to give me some roceph in March april for 4 weeks. NOt one improvement. Waited for 6 weeks to get new Dr and have been treateing for almost 2 weeks now with the abx uptop here. Energy has come back, but neuro is awful. Feet, legs, arms burn and twitch. Weakness in legs at times. BOOO
Posts: 153 | From Tampa | Registered: Jul 2013
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posted
Sorry bout spelling guys. I actually can type ha
Posts: 153 | From Tampa | Registered: Jul 2013
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You say you are taking levaquin daily. Levaquin (levofloxacin) is a fluoroquinolone antibiotic. MAJOR neurological cautions and potential damage with this classification of drug.
ALL of these issues you report can be caused by this drug: ". . . Feet, legs, arms burn and twitch. Weakness in legs at times."
I cannot emphasize enough the importance of this information:
. . . Tell your doctor if you experience serious side effects of Tindamax including fever, chills, body aches, flu symptoms, numbness, burning pain, tingly feeling . . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Tcoach1 - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
Click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
Posts: 8981 | From Illinois | Registered: May 2006
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Yes, so Keebler is pointing out that the Levaquin may be the cause of the burning skin.
If you look at this post by CherylSue, you will see that it did it to her:
"posted 24 April, 2015 CherylSue: I was given IV Levaquin fifteen years ago when I was hospitalized for a 103 fever I had for over a week. I was feeling badly to begin with, but after the IV my skin just burned and burned ..."
So, you may want to consider stopping the Levaquin until you can get together with your lyme doctor to discuss.
Levaquin and other meds in the fluoroquinolone class can have terrible, long-lasting side effects. Nothing to fool with.
Posts: 9931 | From Maryland | Registered: Dec 2007
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