posted
Noticed my burning, twitching, some tightness in both quads resemble fibro symptoms. Upper arms are almost full strength again, but legs are still not there. My neuro symptoms Burning all over at times. Twitching mostly in lower legs Quad tightness / lower back issues is not helping this some weakness still in legs
Am doing IV vanco starting this week to knock this down hard.
Posts: 153 | From Tampa | Registered: Jul 2013
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It's the other way around, fibromyalgia is one very classic signal of lyme, other tick borne infections or other chronic stealth infections.
As well, "fibromyalgia" can also result from issues regarding gluten or other dietary or environmental factors.
For anyone who has a diagnosis of lyme, "fibromyalgia" then drops away as a diagnosis while the constellation of "its" symptoms most certainly go with lyme for about 99% of those affected.
While the pain and other aspects can most certainly be terrible, "Fibromyalgia" is not a concrete thing, it's a set of symptoms. The medical world just thinks its easier to slap that umbrella label on and call it quits. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I hope your doctor will do a combination approach. Most often, just any one Rx is never enough. There are combinations, rotations, pulses, and be certain to get good liver support, too.
Antibiotics won't touch some of the TBD so be sure all the bases are covered.
The dose(s) should be high enough to tackle the science of lyme / TBD and treatment protocol needs to be long enough, too.
I hope your doctor is ILADS educated and stays up to date on all the work all the LLMDs & LL NDs present in their various conferences.
Even if they have their own thoughts or methods, it's vital they consider all aspects and ILADS physician members are an excellent group to keep up to date.
There are some steadfast "rules" to treatment, even if the methods & manner vary (as they should for each patient).
Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Are you gluten free? You don't have to say in case you'd rather not, however, although lyme is clearly in the picture, IMO, it's essential to go gluten free at least until into a good recovery and then you could reassess that part of it.
Being gluten free is much more than just avoiding wheat, too. And even a tiny bit matters. It's only challenging at first and then becomes so much easier and so well worth it.
and
be mindful you are getting enough magnesium, the right kind and right amount, 2-3 x a day (never all at once). Low magnesium can also cause pain / issue with our bodies layers of fibrous tissue and nerve fibers. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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In this section of the Guidelines, the good doctor tells you exactly which supplements to take and often a certain brand. He also gives dosages. So, this is a lot of good information for you to become familiar with and obey.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
My diagnosis was fibromyalgia. I responded well to oral clindamycin 150mg for 5 years to take down fibro pain, then when it stopped working, I am now successfully treating fibro pain with turmeric powder.
I get it at the health food store, dip empty 00-size capsules in it and take a couple a day. It works pretty quickly to relieve muscle and joint pain.
We are all different in terms of what works for us.
Posts: 13116 | From San Francisco | Registered: May 2006
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