posted
My brief history: I'm in CT, 40-yr-old mom, married with two kids (12+8), disabled and unable to work. I've had chronic Lyme disease for 21 years. Was misdiagnosed for a while, and eventually tried IV abx (and other meds like Mepron, etc) for a few years until money ran out. Never really herxed, never saw any improvement at all.
I have an awesome neurologist now who is understanding & sympathetic, trying desperately to help me manage my symptoms since I can't treat the Lyme. Worsening neuro symptoms had her ordering a brain CT scan. Diagnosis is MS according to the tech's report. My F/U apt with neurologist is this afternoon.
Since I can't afford to see a LLMD - literally have NO money - if my neurologist wants to try some treatment for MS, I'm wondering if I should?? It would at least be SOMETHING, instead of laying in bed all day while my kids grow up without me an active part of their lives. . .
I'll search thru & read some old threads here about MS. Just thought I'd try to get some advice specific to my situation. Thanks so much for your time!!! 💚💜
-------------------- Untreated Lyme for 25+ years. Two kids, too much pain & fatigue, no hope of ever being able to treat. Posts: 310 | From Northeast | Registered: Mar 2010
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Sorry to know about this absurd situation...
Many people are on their own for various reasons.
Do you know about Buhner's herbs? They do not cost a lot if you buy them bulk, and last for a while.
I would treat lyme, anyway. There is no use only to manage symptoms when infection is eating up your brain, joints, connective tissue....
Another cheap way to deal with inflammation is to eat a VERY anti-oxidative diet.
I'm doing that now. I had lyme when I was 39 too, and my child was only 1 year old then.
I was also bed ridden. I had no one to treat me at first, because I got no positive diagnosis. I knew it was lyme because all my problems started after an EM rash.
I knew I had babesiosis too due to symptoms and because I could get a short course of antimalarial drug (Riamet) and that eradicated all my symptoms in 3 days.
So my advantage was that I knew THEY (MDs) were wrong, and I was right, so I could put my head to treat myself without their help (even though I found help later).
My 1 year old child was left screaming the whole day, weeks on, months on.... while I was unable to sit up most of the time.
When I could stand up, was to make some food for her or myself, and that exhausted me for the rest of the day.
It's all past for us (8++ years lyme free).
We started with all sorts of protocols, but if I had to re-start again, what I would do is:
- get all Buhner's books and educate myself.
- research all basic (not expensive) supplements that people with chronic lyme take (like magnesium, binders, vit D3, omega 3 etc).
- I would start on a strict anti-inflammatory diet: absolutely gluten free (grain free if possible), all milk product free, lots of raw food (if you can digest these veggies and fruits), absolutely no sugar, no additive, no GLYPHOSATE and prepare some probiotic food (like sauerkraut, miso soup, whatever you can) that is much better than buying expensive probiotics in my opinion.
I'm preparing kimchi, just once a month or even less, and even if it takes me 3-4 hours to do that (because I have to clean my kitchen as I use the sink basin for that), I can have fresh probiotics the whole time (plus garlic, that cleans and kills so many viruses, bacteria and even candida).
The price is ridiculous (very low) for what it gives. It has antiparasitic function too (due to addition of fresh ginger and chili pepper, that is optional). I love the taste of it, and sincerely, I crave kimchi when I don't eat it daily.
Koreans eat that at least 2 x a day, even small children.
Diet looks like a smooth, next to nothing 'treatment', but I start to be convinced that it is the most powerful way to treat inflammation and accumulation of toxins.
Take a look into fasting too. Fasting is another very powerful way of re-booting your whole body: it makes your organs start working again (kidneys and liver, specially), a sort of re-booting of the immune system.
I'm convinced that glyphosate is doing so much harm (as well as electrosmog), and people just take these 2 things too lightly.
You don't need a lot of money to avoid these 2 things...
I hope this gives you some hope.
I swear that only the kimchi above can give people THE herxes of their lives. It can give you a massive herxing effect...
I never fared well with antibiotics and did my whole treatment in other ways (natural and energetic treatments).
In my case, I have no doubt that natural treatments work better in chronic diseases, because they usually involve change in life style too.
Posts: 6199 | From Brussels | Registered: Oct 2007
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posted
have you tried low dose naltrexone? It can be helpful for Lyme and cerainly can do wonders for M.S.
Posts: 477 | From Pennsylvania | Registered: Nov 2015
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Be sure to avoid any steroids as well as any biologics or anything to suppress immune function.
Modulating immune function with LDN is different but that's not for everyone.
You still need to have specific antimicrobials for whatever tick-borne infections are on board. If infections are not addressed, nothing will work in the long run.
Avoid all NSAIDS. Better / safer ways to address inflammation & pain.
Yet, whatever else you do or don't do, antioxidants can help reduce inflammation, pain & support liver (but most insurances never cover this approach).
You might be sure to get all the relevant books by Stephen H. Buhner as there is much that no MD / no insurance is going to cover yet you can do on your own. -
[ 10-27-2017, 09:20 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
I agree .. There are many other things you can do that don't cost a lot of money. Treating for "MS" when it's really lyme could be a very big mistake if immuno-suppressants are involved. Very big.
You can get an EMEM5A rife machine for about $500 .. or do the Buhner herbs as Brussels suggested.
What are your main symptoms?
If your main problem is babesia (just guessing) .. you can treat it with artemisinin and zithromax. It's not an expensive fix.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
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