posted
Guys I'm losing it. I don't think I'm strong enough. I'm sick of waiting for **** to help and it not. The nerve pains, burning, electricals and shocks. I can't do this anymore. I see ppl getting better and why am I not?? I don't know what I'm asking here but I needed to vent. I'm really scared. I'm thinking of switching docs too.
Posts: 606 | From sw suburbs of chicago, Illinois | Registered: Mar 2016
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posted
Perhaps the wrong diagnosis .. or you have something on top of Lyme??
I'll PM you.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Some times a change in docs is all that is needed to totally change your situation.
That was the case with me when I had lyme.
After a year and a half of one doc's treatment, I started getting facial nerve pain that was unbearable--trigeminal neuralgia.
I switched to a Burrascano-type doctor and in 8 months I was symptom free.
Before I got to him, there were definitely days when I felt like ending it.
Burrascano answered a question I had regarding how I could be getting worse while on antibiotics for lyme. He said, "If the therapy is inadequate, the disease will continue to progress."
That's when I knew I was on inadequate therapy. Switching to someone who knew how to get rid of lyme turned my world right-side up and ended my hellish misery.
I made SOME progress on my inadequate therapy. But as time went by, I got new, terrible symptoms. If that is what is happening to you, then you really need to look for a better doc.
Posts: 9931 | From Maryland | Registered: Dec 2007
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
My trigeminal neuralgia felt like I was getting an electrical shock to one side of my face. Unbearable!
People who have this condition commit suicide because this pain is intolerable.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
You guys get nerve pains only from Bb or lyme?
Everyone on the electrical sensitivity forum, basically, has nerve pains.
I don't say they all DO NOT have lyme, though. Maybe they all have, who knows?
But the trigger for them is electrosmog.
I don't have active lyme for many years, but can still have nerve pains from:
- candida or fungal infections
- candida or fungal infections DIE OFF
- excessive electrosmog, wifi, computer etc (also with feeling of being electrical, receiving shocks)
- heavy metals detox will ALWAYS cause me intense nerve pains (chelators)
- only using my violet ray (first months) caused me excruciating nerve pains
- adding good minerals always cause me nerve pains (probably because minerals have a positive charge and chase some toxins that have positive charge out of nerves, and that looks like chelation, and causes me CLEAR nerve pains).
- inflammation of nerves can be caused by viruses, other pathogens than lyme-related.
In my opinion, it is far too easy to say 'lyme' but the answer may not be that clear.
Try taking a POWERFUL antioxidant like Megahydrate (in great amounts) or Ionized Water in great amount: I bet 80 % of you all will feel acute nerve pain.
A last anecdote: I went for an ionizing foot bath session few weeks ago, for the first time.
40 minutes feet on water, after stinking ROOM due to whatever came out.
I felt a bit tired, like after physical exercise. I slept well, fine.
Next day, I started having tendon or nerve pains on my legs. The pain increased slowly, for the next 48 hours.
At times, I felt I could not even walk. It was as though I had climbed a mountain running, my muscles, nerves, tendons, they were all in full pain.
It's not only lyme!
Detox can cause extensive pains too. Plus other viruses and infections.
And you bet that electrosmog too (as it causes headaches for many people, or fibro symptoms to others, which is... nerve pain!!!)
Posts: 6199 | From Brussels | Registered: Oct 2007
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posted
Well I thought it could also be bart or myco. Or Lyme. Some other related infection. Is there any way to know which infection is the cause? So Brussels you're saying do not take too powerful an antioxidant Bc it causes pain? I've heard that about metals. I have not addressed that yet. What if you did it more gently?
Posts: 606 | From sw suburbs of chicago, Illinois | Registered: Mar 2016
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I just finished a book on chronic herpes. An MD wrote it.
She wrote it in German (there may be English version?) Zahra Bergmann
She had looked for help through specialists, years gone, chronic infection remained.
Well, like chronic lyme.
She found no answers and then looked by herself until she found solutions (hard, holistic, food changes, many herbs, etc).
HIV virus HTLV virus Herpes simplex, specially HSV-2
Varicella-zoster virus Cytomegaloviurs
EBV
West Nile-virus Hepatitis C virus
Rabies virus
Borrelia burgd Campylobactor jejuni
Corynebacterium diphtheriae
Brucella spp.
Clostridium botulinum (seen in people who consume non-organic foods due to glyphosate)
Mycobacterium TB Myc leprae
Chagas disease
CONCLUSION:
"Despite their relative rarity, affectations of the PNS by infectious diseases represent a potentially treatable group of diseases.
Although commonly associated with other manifestations of infection, these entities may occur independently and as such a high index of suspicion and early initiation of definitive treatment may preempt long-term sequelae.
Additionally, adjunctive use of immune modulation may, in select cases, improve outcomes.
However, for most diseases, further clinical studies are warranted to optimize outcomes of infectious PNS disease.
Finally, a cautionary point is that use of some antimicrobial agents may actually PROMPT similar PNS diseases, and EARLY CESSATION of offending medications is the best intervention to arrest nervous system damage."
----------------------- Br' comment: the paper suggests that antimicrobials may even CAUSE PNS symptoms!!
the authors did not include fungi / candida type of chronic infections.
Nor food allergies, such as celiac disease: it does cause neuropathy too!!
Posts: 6199 | From Brussels | Registered: Oct 2007
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Brussels
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Member # 13480
posted
Heavy metal cleansing /toxin cleansing, at a certain point, is a must for those who suffer from any chronic disease.
This is my opinion /experience.
You can ignore that, get rid of one chronic disease, but then, another may jump in.
I WISH I knew more ways to detox my nerves and joints without the amount of pain I have to endure...
I'm again on the HPU supplements, let's see what comes. I already feel some pain!
I find pulsed infrared, violet ray, hot baths with magnesium salts help easing such detox nerve-pains... Physical exercise sometimes help too...
Posts: 6199 | From Brussels | Registered: Oct 2007
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posted
I have Herpes simplex 2. And seems the treatment is much the same as for Lyme and co anyway.
So how can you tell what the cause actually is? Also, how would you know if the antimicrobial med is really causing harm? We can mistake it for herx or die off or whatnot. And is that rx or herb?
Posts: 606 | From sw suburbs of chicago, Illinois | Registered: Mar 2016
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
It's the puzzling part of healing chronic infections...
No one knows for sure.
A bit like taking your amalgams off: you think you'll feel great, but you feel CRAP after it.
Then you take binders, still feel crap, it takes time to feel normal again, then after a while you MAY feel better.
But it may take weeks or months after amalgam removal!
the only thing I know, is that when my symptoms do not evolve, stay stuck, it means I'm in the wrong path.
So I change protocols, treatments, diet, whatever I'm doing, and things start moving.
Rarely, things move for better without a down curve.
It usually comes THROUGH a down curve, of worsening of symptoms, then it climbs up after.
Kill anything, you may have herxes, more pain, etc, right? It means you are going right, but it feels you are going wrong.
But if you kill too much, you may have too high liver enzymes, you may get a kidney infection, you may get so nauseous and feeling so crap you can't even eat, or move.
So you start going backwards: so killing in that case is bad.
Once you can't detox, you initially gained a bit with killing, but lost the main battle as you go backwards, and weaken your body, your immune system, and pathogens take the lead again.
You kill babesia: bart shows up.
You kill Bb: candida shows up.
You kill a parasite: a fungal infection start or a bacterial infection starts.
I wonder, how you guys can deal with lyme and chronic infections without energy tests.
I sincerely could not. For me, energy testing was a blessing.
It is not something I say: it's 100% sure. Nope, far from that.
But at least, I can access a bit what's going on inside me: is my liver strong enough, or need more support?
What bacteria is the most active?
How much from each herb do I need to kill one pathogen?
And when the next shows up, what herbs should I drop and what herbs should I add?
How much from each binder do I need to feel less crap?
Is this food helping me or dumping my health down?
Etc...
At least, energy testing gives you hints, ideas on what is going on.
The equations are too complex for any human being to deal with. Just see all these brainy doctors, trying to find out solutions...
Then comes electrosmog, mold, all sorts of viral infections, parasites, food allegies, heavy meatal poisoning, now glyphosate and GMOs doing extreme harm...
Take off a food we are addicted to (like gluten or sugar containing foods) and the person goes through a healing crisis too.
Not always, but it can happen. Most people get a sort of mental-herx. It feels WRONG for the body and mind to refrain from added-sugar, for example.
we all know it's doing bad, but refraining from it feels more like hurting than healing...
Posts: 6199 | From Brussels | Registered: Oct 2007
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posted
Do you mean like bio-resonance? I've done muscle testing but I dunno how much I trust that. It's saying I dont need things I think I do (eg, fish oil, curcumin). I've done Ondamed too.
Posts: 606 | From sw suburbs of chicago, Illinois | Registered: Mar 2016
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I guess, yes, bio resonance is one type of energy testing.
I never did it thoroughly though, I know today there are very sophisticated devices.
I did ART from dr. K. It's a sort of kinesiology school developed by him.
Muscle tests won't work usually, if the person's regulation is not functioning / open.
The first course of ART is basically to learn how to open someone's regulation, so that the practitioner can test.
If the regulation is closed, muscle tests are useless, in my experience. Answers are random.
there are loads of ways to test people energetically. I just know one way, and can't speak for other methods, sorry...
He uses a Polarization Filter to determine when the regulation is open... I trust it because I've been using it for about 10 years.
But even with an open regulation, tests are only 70-80% 'correct'. He also says that.
------------------- Ondamed, isn't that a PEMF treatment?
Posts: 6199 | From Brussels | Registered: Oct 2007
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posted
"Finally, a cautionary point is that use of some antimicrobial agents may actually PROMPT similar PNS diseases, and EARLY CESSATION of offending medications is the best intervention to arrest nervous system damage."
I have to assume they are talking about dugs like Cipro, Flagyl etc., here that are notorious for causing nerve damage.
I have been struggling with pretty severe nerve stuff ever since taking a TDaP vaccine. Once our nerves are damaged, I have found there is so much that adversely affects them that wasn't a problem previously. MSG now sends me into an inferno of pain and weakness that lasts weeks after exposure. Like pouring salt in a wound.
Posts: 184 | From CT | Registered: Aug 2006
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
DtPA vaccine does not have MSG (monosodium glutamate) but has glutaraldehyde.
If I understand well, it can induce the body to produce antibodies against MSG ... (?)
MMR vaccine has MSG as a component.
the old shingles vaccine too.
Injecting all these stuff directly in the blood does not look smart...
They come with all those toxic components + animal proteins / fetuses / embryos / brain cells and all are directly injected into the blood.
I don't think there is a better way to increase allergies than injecting chemical poisons + heavy metals +
+ DNA and cells from embryos / brain / lung tissue / chicken directly in our blood and lymph + DNA of viruses / bacteria /antibodies coming from these animals or aborted human fetuses.
It's a shame some of us have to suffer with so much inflammation and nerve damage.
How much damage derives from such vaccines, I wonder...
Just the fact that it increases inflammation, is destructive in itself, as inflammation is the break up of tissues.
Nerve inflammation is the break up of nerve cells!
Posts: 6199 | From Brussels | Registered: Oct 2007
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