posted
A number of years ago, I saw somewhere that Columbia Presbyterian was doing a study on Autism and Lyme Disease. Now my 3yo grandson has been evaluated and is said to have Autism. He was delayed in talking and does not focus well, although he is improving a lot since in special needs classes at the local public school. His parents also work with him at home. He also has had rashes since he was a baby and suffers from GI problems since he was a baby ( this is improving some since his diet has been changed and he takes probiotics. He was always a smiling, happy, baby. I am wondering if there is anything to the connection between Lyme and Autism. Their dog had Lyme and they lived in a tick infested area of VA and now CT. My husband, son (grandson's Dad), daughter, brother, sister -in-law, 2 nieces , myself, etc. have suffered with Lyme, so I am not sure if I am biased. Haha. Thanks for any input !
Posts: 26 | From CT | Registered: Sep 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Breaking up your post so that I can read it. Others might also have trouble as many do here with no "breathing room for the eyes" -- future posts are best with no more than 3 line paragraphs so that more can read and reply. Thanks. ----------
Mrs. Lyme posts:
A number of years ago, I saw somewhere that Columbia Presbyterian was doing a study on Autism and Lyme Disease.
Now my 3yo grandson has been evaluated and is said to have Autism.
He was delayed in talking and does not focus well, although he is improving a lot since in special needs classes at the local public school.
His parents also work with him at home. He also has had rashes since he was a baby and suffers from GI problems since he was a baby ( this is improving some since his diet has been changed and he takes probiotics. He was always a smiling, happy, baby.
I am wondering if there is anything to the connection between Lyme and Autism. Their dog had Lyme and they lived in a tick infested area of VA and now CT.
My husband, son (grandson's Dad), daughter, brother, sister -in-law, 2 nieces , myself, etc. have suffered with Lyme, so I am not sure if I am biased. Haha.
Thanks for any input !
[by Mrs. Lyme in CT] -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- He should be assessed by an ILADS educated lyme literate doctor.
And, you, my dear: good catch. No, his is not "bias" thought. It's being educated. Yes, there is a strong connection for some with autism - not always, of course. But most regular doctors, even pediatricians won't be able to do a proper assessment for lyme. This requires a very special kind of doctor.
And have all be very careful to keep this quiet until such evaluation. There are reasons not so YET share this with any regular doctors, teachers, etc. Get a proper assessment first. Then ask them how & when to share anything about lyme or treatment.
The child can be told he's going to see more experts to help but probably best not to let him hear about "lyme" so that he does not spout it out all over.
If he is found to have lyme - or other tick-borne infections, and if there is a complex treatment plan, there can be some issues with those who are in authority positions. A good pediatric LLMD can guide if this turns out to be a connection.
For the past 25 years, LymeDisease.org has been connecting patients with lyme literate doctors . . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Vaccines are another consideration. The aluminum - and other agents - can affect some people very differently from the mainstream. It's much more involved than just mercury (which is out of some, less in others but still there in many)
Of course, this topic is very tender these days and those who are more educated about it can be ostracized. Be aware of this, too, as you explore information. Don't broadcast it all just yet.
A good LLMD for assessment can also be asked about all kinds of additives in foods, Rx, etc. that might be problematic for this particular child.
MSG, even "natural flavors" in foods often are best avoided.
Back to vaccines, There are many other ingredients to consider. Aluminum and glyphosate (sp?) especially. It's used in a farm chemical. See the organization & educational links here.
quote:Originally posted by Keebler: - Breaking up your post so that I can read it. Others might also have trouble as many do here with no "breathing room for the eyes" -- future posts are best with no more than 3 line paragraphs so that more can read and reply. Thanks. ----------
Mrs. Lyme posts:
A number of years ago, I saw somewhere that Columbia Presbyterian was doing a study on Autism and Lyme Disease.
Now my 3yo grandson has been evaluated and is said to have Autism.
He was delayed in talking and does not focus well, although he is improving a lot since in special needs classes at the local public school.
His parents also work with him at home. He also has had rashes since he was a baby and suffers from GI problems since he was a baby ( this is improving some since his diet has been changed and he takes probiotics. He was always a smiling, happy, baby.
I am wondering if there is anything to the connection between Lyme and Autism. Their dog had Lyme and they lived in a tick infested area of VA and now CT.
My husband, son (grandson's Dad), daughter, brother, sister -in-law, 2 nieces , myself, etc. have suffered with Lyme, so I am not sure if I am biased. Haha.
posted
I'd consider finding an LLMD who will do the Advanced Labs test on him. My son was dx'ed w/autism at 2. He had all his shots up to that point and the mmr really sent him off into la-la land. At 6, our DAN doctor tested him through Igenix and discovered lyme and co. Evidently, mom gave it to him at birth as she subsequently tested igenix positive and remembered a deer tick attached to her 17 years prior. Over the last 8 years he has seen many LLMDs including both Dr. Js and taken most every oral abx for lyme known.
At the 3-year mark on abx, we did the advanced lab test and received pictures of his unwelcome invaders. He's almost 15 now and better, but he's still autistic and probably still has lyme. We may do 1 more AL test over the summer and try dapsone, but we're running out of options. I wish someone would test suramin on borrelia as it temporarily improved the lives of ASD (who may or may not have lyme) kids in the small study last year. Anyway, good luck helping your grandson.
posted
So sorry about your son, Rhiagel. It is so hard watching an adult suffer with this awful disease, but heartbreaking with a child.
My daughter-in-law made an appointment with her pediatrician as soon as I gave her some information about the connection. I gave her Dr. Jones info too. I will tell her about the AL, now that you mentioned it.
Thank you for help.
Posts: 26 | From CT | Registered: Sep 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Re: appt with her her pediatrician
She needs to be very careful about bring up either lyme or vaccines. I know that sounds odd but please let her know to be sure to tread carefully so as not to "red flag" herself or child.
The links above will help, still, it's vital to understand the politics and constraints on most regular doctors BEFORE opening one's mouth. Doing some background on them about how they think, their work helps.
Talk first to lyme support groups and autisim parent groups (that think more broadly beyond the typical medical model). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I will warn her ! Thanks for the heads up. I can't believe this political crap is still going on !
Two of the docs that treated my husband were sued ( it took forever back then for someone to stick their neck out and do so !) I, stupidly, thought there were more open minds these days.
Posts: 26 | From CT | Registered: Sep 2008
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