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» LymeNet Flash » Questions and Discussion » Medical Questions » Is Actigall helpful for ducts & liver with rocephin when no gallbladder?

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Author Topic: Is Actigall helpful for ducts & liver with rocephin when no gallbladder?
Rumigirl
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to prevent stones or sludging in ducts or liver?

[This is an old thread I started years ago. I'm deleting some of the original post that doesn't apply now].

I don't love the med, but I DON"T want to run the risk of stones/sludging in ducts or liver. I lost my gallbladder to rocephin, and my digestion has never been the same since my gallbladder went south, and even worse after losing it. Thank you!

[ 02-09-2018, 09:15 PM: Message edited by: Rumigirl ]

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YinYang
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??? up...
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Lymetoo
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I would THINK it would help with sludge. But I don't know if there is a NEED for it. (??)

I will say that my GB is out and I've had to have an ERCP (4 yrs ago) to remove a small stone. And I was not on Rocephin.....soooooo......

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--Lymetutu--
Opinions, not medical advice!

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Rumigirl
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Thank you. I forgot to ask him today. It's probably true that it's not really necessary. I'm sure that he would have said as much. And to add yet one more med . . . that's a lot to process.
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Razzle
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Thanks for asking this question, I was wondering the same thing!

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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Rumigirl
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I'm bringing this up again.

I need to go back on treatment, ideally, including IV, possibly rocephin. When I did it years ago, I took Actigall and still got sludge (not stones though). Had horrible gallbladder attacks!!

But in spite of tons of liver/gallbladder flushes (which did help), I finally had to have my gallbladder out. The pain was too great for a whole year.

BUT I do NOT want to get sludging or stones in the ducts, which can still happen! Who knows if the Actigall helped it not to create stones, or didn't help at all.

Anybody know about this?

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Keebler
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1. I'm most comfortable suggesting any LLMD who prescribes rocephin would be best to answer your question.

In addition, what I have in my file notes that I also think might merit study and application:


Are you not considering some of the top notch liver supports like MilkThistle? There are at least a dozen other herbs with similar excellent liver support if that is not to your liking.

The creation of "sludge" regarding liver might be seen in TCM (Traditional Chinese Medicine) as stagnation, with various causes of it related to the liver stress.

Any Rx that is hard on the liver really needs some kind of good solid liver support on board. Timing away from Rx, of course, but still vital.

For gallbladder and liver (so, I suppose even if there is no gallbladder, for surrounding organs) . . . first thing to consider is CHANCA PIEDRA

I have many article links but don't seem to have a set of links all handy on one page. For a start, the article below.

Herb Pharm makes a nice tincture. It may be called Stonebreaker.

Rain-Tree (Leslie Taylor, ND) brand also excellent and has various forms of it.
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Keebler
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http://www.rain-tree.com/chanca.htm#.Wn5XVvmnHtQ

Chanca Piedra (Phyllanthus niruri)

By Leslie Taylor, ND


http://www.raintree.com/

Raintree Chanca Piedra -

search here to see all their forms: capsules, tincture or powder


http://www.herballegacy.com/Thomas_Medicinal.html

Medical Qualities of Chanca Piedra

by Melody Elaine Thomas


https://www.herb-pharm.com/products/product-detail/chanca-piedra

Herb Pharm Chanca Piedra

https://www.herb-pharm.com/products/product-detail/stone-breaker-chanca-piedra

Herb Pharm Stonebreaker - a blend


http://www.ncbi.nlm.nih.gov/pubmed?term=phyllanthus%20nirurii

PubMed Search:

Phyllanthus nirurii - 592 abstracts
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Rumigirl
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Thank you, Keebler. Rocephin can create sludging or stones by combining with calcium, not with cholesterol, the way sludging or stones are normally created. It forms "crystals" with the calcium.

Although it may be hard on the liver, it is a different mechanism. Arghh! I am not sure anyone totally knows the answer to this, other than feeling it out.

I am not saying that liver support would not be helpful, of course. I do liver cleansing daily, actually, particularly since I was diagnosed with breast cancer, close to 2 years ago. I am not necessarily out of the woods with that.

But the infections, and immune suppression as a result, is what caused the cancer I feel. I have been off treatment for a year, inadvertently, due to dealing with the cancer.

But I've gone down horrifically in that time with severe, progressive neurological damage: severe motor problems, breathing problems, severe problems walking (barely can), 7 terrible falls, 3 of them catastrophic, and on and on. I've been on death's door for years, getting progressively worse.

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Keebler
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More Chanca Piedra links added above. That may be more suitable to preventing calcium crystals, so to speak.

Most real food groceries carry Herb Pharm in their Wellness aisles.


The thing with liver "cleansing" - I think that can be very hard on the liver. I believe more in feeding the liver key nutrients that let it work better.

Though the term may vary, the idea of "cleansing" or a "flush" can actually be rather violent or traumatic as opposed to nourishment and nurturing. For what that's worth. There's a lot of variation, of course.


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT

[ 02-11-2018, 01:00 PM: Message edited by: Keebler ]

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Keebler
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I am sorry that it's such a rough & tumble road. Hope you have a cozy weekend and maybe can enjoy some good art, in some form.
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Keebler
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The falls concern me for various reasons but wonder if ototoxicity / vestibular toxicity might be part of it. If so (as so many Rx can damage the ear's balance system), liver nourishment is always important.

Is there anyway you might get a RIFE machine so Rx could be minimized? No need to answer, just hoping.

Buhner's books may also have some other paths.

Hope you have good shoes for stability. I've taken so many tumbles and I know my brain sure gets all shaken with those so it can be hard to come back from that. Take care. I hope you have some good nurturing in your life. Hugs to you.
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Rumigirl
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Dear, dear Keebler,

Thank you, thank you, thank you for your information, and for your caring! You are the best!

I have to do liver, etc. cleansing, and it helps me enormously. For one thing, my elimination shut down 2 years ago and responds to nothing, not magnesium, herbs, prune juice, etc., etc.

For another, my body does not detox well, and only responds to coffee enemas, etc. And responds well to them. Plus, it is one of the mainstays of my cancer "treatment." I have NOT gone the traditional route, and never would. Outside of surgery, that is. I finally had to do that, twice, last year. (Surgeon didn't get it all the first time)l.

I do have a number of rife machines, but after years of doing rife + herbs, etc., etc. early in my treatment, I only got worse, horribly worse. Abx was the first thing to help me.

In terms of the falls, they have been going on since about 2012 or 2013, I have horrific issues with balance, perceptions, and motor problems. No, they are not from vestibular issues (was tested for that).

It's all from the horrible, well-documented damage to my brain and every other part of my nervous system.

On top of that, I need cataract surgery; I can't see!! I tried all kinds of glutathione, etc. drops for the cataracts, but no help. I didn't do the surgery sooner, because I've been dealing with the cancer.

Lord have mercy!

BTW, in a cruel turn of fate: I was a professional dancer when I was young; I danced since I was 3. So this is an even crueler turn of fate.

On the Actigall question, I didn't intend to ask, or think about this question, but stumbled on the old thread where I asked about it. Frankly, I don't think I would want to add that to the mix if I do rocephin.

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Lymetoo
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Why wouldn't you want to add it, Rumi? I know I can't use it anymore, so I get that some of us can't take it.

I will step up my prayers, Rumi!

--------------------
--Lymetutu--
Opinions, not medical advice!

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Rumigirl
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I guess I would add it, if I do rocephin, and if my doctor thinks it might help.

Thank you, Lymetoo. I'll gladly take the prayers! I'm at my wits end. The CRPS pain is the worst. How is one person supposed to take this much?? Actually, two people. That's a rhetorical question, of course.

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