posted
This is my third time trying... all 3 times I developed severe panic attacks. Twice I went to the ER. I did get the diarrhea as described, and the panic is supposed to be a herx? But I just can't do it. It's so extreme I feel like I'm going to die.
The latest time I did salt/c I went from 1/4 tsp. of pink salt and vitamin C per day, up to 1/2 tsp. each, and then I finally got to 3/4 of a tsp. for a few days before my kidneys started getting sore and I gave up. Then after I stopped, I developed chest pain, shortness of breath, and muscle weakness. This time it happened twice. Both times I drove to the hospital. The first I just sat in my car. The second, yesterday, I went to the ER. They did an EKG, a chest x-ray, checked my heart enzymes, electrolytes, sodium levels, etcetera and everything was fine. They said it was "anxiety/panic" attack.
I just don't know at this point. I don't dare to do the salt/C. I know that is going to happen again, and it really feels like I'm going to die. It's just too scary and awful.
That said, maybe the salt was actually killing something. The doctor in the ER said 1/2 teaspoon of salt for the amount of time I took it wouldn't cause my problems (or at least she didn't think.)
Still, my blood pressure did seem somewhat high. I was checking it while on salt and it was low, but then it went moderately high after I stopped.
Anyway, I'm at a loss. I'm going to see my doctor on Monday and see if I'm deficient in vitamin D or magnesium or something else that could be causing the panic. I wish I had more confidence in the safety of the salt protocol.
-------------------- . Posts: 15 | From New York | Registered: Dec 2015
| IP: Logged |
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Sorry you have to go through all that....
I gave up salt/C a LONG time ago.
It was too much for me too. Somehow felt like being poisoned.
I already took about 1/2 spoon of himalayan salt a day in food, so adding more 1/2 spoon, I thought would not do much, but it was too much too.
Whatever people say (from the salt and C group), listen to your body, your gut, not to them.
Salt /C caused me tinnitus that took many months to get better.
It also increased my blood pressure after a while. It was systematic: adding more salt increased my blood pressure. So I stopped, and sort of regretted having done it.
No simple solutions for chronic lyme, unfortunately. You need MUCH more than salt and C only.
Take supplements, herbs, change your table salt to salt, but do not eat loads of salt if you react this way.
That is what I would do, at least.
If it FEELS TOO WRONG, like you describe, I would trust my feelings!!
Posts: 6199 | From Brussels | Registered: Oct 2007
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Move on, your body is telling you. This is not that great of a "thing" anyway.
Still, be sure you do use SEA SALT in your diet, at a normal amount. A little bit in the morning is important for adrenal function, too. Never go without salt but table salt is not the best choice due to the way it's processed.
You might find benefit in the various tick borne infection books by Stephen H. Buhner. He writing is superb. -
[ 02-04-2018, 01:20 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
Not many people think of it, but I'm very intolerant of ascorbic acid. I always thought I did terrible on vitamin C.
I switched to a lower dose vitamin C made from fruit (I take 3 different brands for variety of which fruit it's from) and have had good success with it!! I don't use it for Lyme treatment as I don't have Lyme anymore, but for my skin and maintaining health, I've had excellent results with the fruit sourced C.
My dad who is in his 80s was having very, very bad bruising. I told him about vitamin C and he brushed it off and said he took tons of C. I finally got him to switch over to fruit sourced and his bruising is greatly diminished. His doctors can't figure out why. When he tells them about the change in vitamin C, they say it can't be that.
I agree with everyone that you need to listen to what your body is telling you, but also keep in mind that high doses of ascorbic acid may be part of the problem. If you do try again, don't start with both at the same time. It would be nice to know whether it's the salt or the C that's causing these issues.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- sixgoofykids,
brand of your vitamin c, or fruit / plant supplement?
Might it be Camu-Camu or Triphala?
Also just found out about Sodium Ascorbate Powder, Nutribiotic makes it. Suzanne Humphries, MD has YouTube vidio about Vitamin C and explains this more gentle one.
I'm still not touting the Salt / C thing but as Vitamin C goes, excellent point about different sources of it. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
I tried this a while back and felt horrible and toxic. I realized that if you really think you need vitamin C, go eat whole food that has it.
Posts: 173 | From USA | Registered: Aug 2015
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Christopher J,
Good to note that real food is best. My mouth tissue and lips cannot tolerate any acidic foods whatsoever. So I have to get Vit. C some other way that is super fast down the hatch with a quick water chase but also less caustic. Even the not hot but "sweet" red bell peppers really burn my mouth.
I do think in general, it is best to get vitamins in real food. Since scurvy can be so destructive, though, many who may have mouth tissue issues might become more inclined to be deficient in C.
For vitamin C, though, at least the supplements that are closest such as Camu-Camu & Triphala (condensed berries in a pill) work nicely for me with their vitamin c content. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
quote:Originally posted by Keebler: - Christopher J,
Good to note that real food is best. My mouth tissue and lips cannot tolerate any acidic foods whatsoever. So I have to get Vit. C some other way that is super fast down the hatch with a quick water chase but also less caustic. Even the not hot but "sweet" red bell peppers really burn my mouth.
I do think in general, it is best to get vitamins in real food. Since scurvy can be so destructive, though, many who may have mouth tissue issues might become more inclined to be deficient in C.
For vitamin C, though, at least the supplements that are closest such as Camu-Camu & Triphala work nicely for me with their vitamin c content. -
Broccoli! Not acidic and loaded with C.
Posts: 173 | From USA | Registered: Aug 2015
| IP: Logged |
It's been a little over a week since I went to the ER. I had panic attacks every day last week and a somewhat rapid/irregular heartbeat. Things have calmed down in the last two days. It's frustrating to not know whether it is a herx or potential damage from the protocol. I tend to think my body doesn't want me consuming extra salt. I don't think I'll ever try this again, it's just been too strange.
-------------------- . Posts: 15 | From New York | Registered: Dec 2015
| IP: Logged |
posted
It could also have been a reaction to the vitamin C, but in my case, I've taken a lot of C before with no problems, both powdered C and capsules. I was using a relatively cheap powdered C that I ordered on Amazon.
The one thing I probably could have done better while doing the protocol would have been to eat more fresh fruit and vegetables. I did drink coconut water, but wasn't paying much attention to my diet.
-------------------- . Posts: 15 | From New York | Registered: Dec 2015
| IP: Logged |
quote:Originally posted by Keebler: - sixgoofykids,
brand of your vitamin c, or fruit / plant supplement?
Might it be Camu-Camu or Triphala?
Also just found out about Sodium Ascorbate Powder, Nutribiotic makes it. Suzanne Humphries, MD has YouTube vidio about Vitamin C and explains this more gentle one.
I'm still not touting the Salt / C thing but as Vitamin C goes, excellent point about different sources of it. -
One of them is camu-camu. I also use Nature's Way fruit sourced and Vitamin Code. I haven't found that one works better than the other, so I buy what's available at the time as long as it's fruit sourced and not ascorbic acid.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- six,
Thanks so much for detail on both. Camu-Camu certain "reads" well. I've been studying it for a while yet have not tried it. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/