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» LymeNet Flash » Questions and Discussion » Medical Questions » Update on Dapsone

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Author Topic: Update on Dapsone
Tcoach1
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Been on dapsone for over two weeks now.
Dapsone once daily
Clarith once daily
tindemax once daily

2 years of lower leg twitching is almost gone.
hurting ankles so bad I could hardly wear shoes are so much better.

Blood tests are normal so far.

**fingers crossed

Posts: 153 | From Tampa | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
nomoremuscles
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That's great.

If you don't mind my asking, how bad were your legs? Able to walk well, impaired, not at all, only sometimes?

I ask because the muscles in my shins, ankles, calves, and feet, are really bad, too. Lots of cramping, and electrical sensations, twitching contractions, and especially weakness, tightness, and pain.

But all the abx therapy over the years made me much worse, so I am concerned that there is a possibility of this stuff causing a loss of function that is not reversible. That's why I'm asking about your level of function (I hope you don't mind.)

So it's really great to hear that something is working. I hope it continues, and you get full relief.

Posts: 844 | From Eastern USA | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
Tcoach1
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Toxins flushing out is big. I use charcoal and cholystimine (again my spelling is not good)
Ankles were so bad I was using sandals only. I had the weakness last year...

Posts: 153 | From Tampa | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
Charlie Fitzgerald
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Dapsone helped me get past a big plateua, traditional antibiotics didn't do much after years of treatment.

Stevia made dapsone a lot more effective for me, herxing increased tremendously. I was so much more clear headed, could think better, talk better, and energy leverls were a lot better overall.

Just walking and running(cardio) would also help circulate dapsone through my body better. I felt incredible being on this drug. But eventually toxins built up and I had to take a break.

Using alka seltzer/bakin soda drinks, Liver Aid, running/sweating, baths, cannabis CBD/THC, helped detox as well.

I started off on 25mg for few months, then worked my way up to 75mg, then added in doxy. As well as taking Stevia.

Best of luck Tcoach1, I'd get on Sweetleaf Whole Leaf Stevia Concentrate if I were you. Only $10 a 2oz tincture....

Take your Dapsone protocol, then take 3-4 drops underneath your tongue, hold for 15-30 seconds, then swallow.

Xylitol worked a little, but nothing worked as much as effective as Stevia for me...

Posts: 108 | From Germany | Registered: Jul 2017  |  IP: Logged | Report this post to a Moderator
lightfoot
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Wow! Keep ids in the loop! I am considering this too.

--------------------
Healing Smiles.....lightfoot [Smile] [Smile] [Smile]

Posts: 7094 | From CO | Registered: May 2002  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Good to hear!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95723 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Badtick
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Thanks for sharing. That is great news.
Posts: 184 | From CT | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
willbeatthis
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I know of a success story of a patient that did Dapsone and completed that protocol and now only takes biocidin every day. Great success! I am happy for you!! Glad to hear your symptoms are resolving!
Posts: 859 | From Southeast | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
   

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