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» LymeNet Flash » Questions and Discussion » Medical Questions » Zetia/Ezetimibe 'Flu' Perhaps the Answer to my Recent Health issues

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Author Topic: Zetia/Ezetimibe 'Flu' Perhaps the Answer to my Recent Health issues
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196

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Hi <<<<< LymeNet Family >>>>>,

I've been on generic Zetia for a year, it is sometimes used to fight Cholesterol for those who can't/wont do statin drugs.

It 'acts by a different mechanism than statin drugs...'. I had carefully checked side effects,and tho't I'd be okay, Cardio Doc' really wanted me to stay on it.

I checked side effects again, and found an expanded list of them. Low and behold, it appears the 'fluish' feelings, joint pain, tiredness,and stiffness ,

...as well as unusual bleeding, rashes sore throats, hoarseness, low grade fevers and tightness and pain in chest,are sensitivity warnings, and a probable allergic reaction.

So I am off the Zetia med for a bit to see if it calms down. I was leary of it to begin w/ because it can cause some statin allergy/sensitivity type of reactions.

Tho' we kept being told that was/is rare, from the info' I saw, maybe it isn't all that rare, especially for allergy/ sensitivity prone people.

I don't think I'll be going back on it... and I am not convinced that the cholesterol is all bad always.

Jus' Silverwolfi

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3467 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Member # 743

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Those of us with Lyme and especially with MCAS react to many many meds. I'm glad you have found the source of your troubles.

[group hug]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94601 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196

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Thank You <<<<< Lymetoo >>>>>,

TrekC' and I both feel, the expanded listof side effects is to close to my symptoms to be a coincidence.

So I am hoping it resolves most of the issues, and we are looking for a Doctor w/ MCAS/MCAD knowledge.

Eating is still scarey, but we all have too!

Jus' Hopeful Silverwolfi

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3467 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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Yes, eating is scary! I know of a doctor in Phoenix.

Best of luck with being less miserable soon!!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94601 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196

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Hi <<<<< Lymetoo >>>>>,

Thanks for the well wishes, intestines are acting up a bit, but I'm hangin' on.

Id' be interested in that Doctors name for sure, we may end up going up that way sometime this summer, not sure as yet.

I hope you are feeling better too!!!

Jus' Silverwolfi here

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3467 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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