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» LymeNet Flash » Questions and Discussion » Medical Questions » Obtaining IVIG. How can i get IVIG. anyone?

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Author Topic: Obtaining IVIG. How can i get IVIG. anyone?
Truly
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Member # 22257

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Hi I have a compromised immune system ( who doesnt!) but functioning at 27%! My LLMD is excellent but says its difficult to get this and very expensive. I already had a botched picc line that caused a clot in my vein so probably have to go with the portacath. UGH. I know a nurse must administer the IVIG but would like to know if anyone is on this, or dine it and feels better after treatment. Im on over 60 supplements per day. Im thinking i could get better with IVIG.
Appreciate any info and help.

Posts: 8 | From NW N.J. | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939

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My LLMD ordered mine. You don't need a PICC line or port to administer it. I went to the infusion center at the hospital to get it for years.

Then I switched to subQ and did it myself at home. I liked the subQ MUCH better.

My Total IgG was very low in addition to subclasses 1,2,3 and 4.

--------------------
2 Corinthians 12:9-11


9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me.

Posts: 1445 | From Poconos, PA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
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Hi Truly

I can help you with IVIG.

Here are my posts on my journey towards getting insurance covered IVIG treatments. I get infusions at home, 1x a month, by a nurse. And yes, they help greatly. Not a magic bullet but combined with other treatments, you will feel better. Everything works in unison. Hope this helps.

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/135289?#000000

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/135434?#000009

Posts: 2165 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Truly
Junior Member
Member # 22257

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quote:
Originally posted by Bartenderbonnie:
Hi Truly

I can help you with IVIG.

Here are my posts on my journey towards getting insurance covered IVIG treatments. I get infusions at home, 1x a month, by a nurse. And yes, they help greatly. Not a magic bullet but combined with other treatments, you will feel better. Everything works in unison. Hope this helps.

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/135289?#000000

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/135434?#000009


Posts: 8 | From NW N.J. | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
   

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