posted
your physician refused to issue a western blot test for lyme and claims the elisa (which I had negative earlier btw) is the best indicator to rule out the disease, does it seem like my doctor doesn't know the testing process and is unethical?
Posts: 81 | From ohio | Registered: Jun 2018
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posted
she labels it as anxiety I have even though I told her my symptoms of depersonalization, memory lapses, brain fog, fatigue, static vision, tinnitus, and fluttery heart 24/7 and bad diarrhea/leaky stools, it's seems like she ain't understanding me
Posts: 81 | From ohio | Registered: Jun 2018
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Yes. It's very common and shows you have to find a different doctor and limit very much any mention of lyme at all with this doctor in the future.
This doctor will not be able to help you - at all. Sorry.
She - likely all in her clinic - likely all "typical" doctors connected with any clinics follow the IDSA guidelines on testing, etc.
She may know more but may not be allowed to say so. Likely, though, she buys into the IDSA way of lyme.
One suggestion: unless you are talking with a true & real ILADS educated LLMD, do not list, do not mention: depersonalization.
It will be sorely misinterpreted by those who do not know lyme and then you will be labeled with this / various psych labels.
Yes, the symptom of depersonalization can be part of lyme, babesia, others . . .
yet also can be explained by the brain inflammation inner / middle ear dizzying effects and a toxic liver, among others. The endocrine hit from lyme / TBD also contributes to the trouble managing stress and feeling very much out of sorts..
Keep in mind the symptoms of (or mimicing of) depersonalization with infections are very, very different from the official psychiatric diagnosis of depersonalization,
I hope you can find a good LLMD who can best assess you. Take care. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
MORE WAYS TO FIND A DOCTOR and WHY you need an ILADS "educated" or "minded" LLMD (lyme literate doctor). See the "Physician Training" tab at ILADS.
See their past conference session topics to explain why this kind of additional medical insight is literally required if a doctor is going to know what they need to know to help.
For anyone new to lyme or other tick-borne disease, these are among the top patient education, advocacy and public awareness organizations:
Global Lyme Alliance -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- "Politics" of lyme and other tick-borne diseases (remember lyme rarely travels alone. Other infections require specific testing, too, and different treatment methods).
This excellent documentary set explains so much. This also streams on some of the video streaming outlets. Your local lyme support groups might have to loan . . . or you can get it here, too:
UNDER OUR SKIN DOCUMENTARY SERIES -- Uncovering the Truth about a Global Epidemic
posted
Hi Kevin - this is very common, trying to keep us undiagnosed by running a weak Elisa test.
You can post in Seeking a Doctor for referrals to Lyme-treating doctors near you in Ohio.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
thanks for the replies guys but I know this is off topic but I didn't really wanna create another separate thread but I had a brain MRI scan done last week and was curious if anybody can decipher the results because the extra ventricle spaces (I have 5 ) they discovered is frightening to me and also the cavum septum lucidum finding
Findings: Ventricles and extra-axial spaces: normal for age. Cavum septum lucidum is incidentally noted.
Brain: Normal signal intensity on all pulse sequences. a few punctate signal changes are again noted which are nonspecific and are within normal limits. No evidence of edema, mass, or infarction
Brainstem: Normal
Cerebellum: Normal
Other: The vascular flow voids are intact. the mastoids and visualized paranasal sinuses are grossly clear. No intracranial hemorrhage is seen. the sella is unremarkable. the calvarium is unremarkable.
Impression: Unremarkable MR examination of the brain
any thoughts?
Posts: 81 | From ohio | Registered: Jun 2018
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