LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
yes, I have it. hmmmm.... well, what exatly do you want to know?
I read a lot about it and realized I had the SX. told my genetic person about it and he looked into it and confirmed I had the genes for the "perfect storm".
went to mew LLMD and they also confirmed the DX.
what happens to me NOW (before it was not this bad): every time I eat I get itchy- especially on my upper back first. I also get an anxiety "attack in my stomach (yes, really), and it travels quickly up to my head and then I get very hot and feel like I am wanting to run down the street naked screaming. then I get very very aggitated and can't stand anything. then, I sweat like a pig and usually have to run to go pee. then I calm a bt and then get very cold.
sometimes I don't get cold for hours
that whole episode usually takes just minutes. it varies in length and intensity and it is the most horrible feeling in the world..
MCAS can also have other ways of manifesting. I am told my inflamation is generally from it. I just read tinnitus can also be from it. ??
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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