LymeNet Flash: Horrible pain with Rifabutin

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Horrible pain with Rifabutin

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Topic: Horrible pain with Rifabutin

Mountainsky
LymeNet Contributor
Member # 51857

posted

All morning now I've had horrible chest pain, pain in my back and in my upper stomach region.

What did anyone take for this to subside and why is this happening?

On this rifabutin now 3.5 weeks.

Thanks

Posts: 597 | From Massachusetts | Registered: Mar 2019 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Sounds like acid reflux from it.

Did you call your doctor?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

Mountainsky
LymeNet Contributor
Member # 51857

posted

Definitely not acid reflux. I felt better after having lunch.

Last week and over the weekend it was all down my legs and hips.

**** it, this sucks so much.

I refuse to call my LLMD. I don't want her to take me off.

I now have 2 Lyme rashes coming out.

Posts: 597 | From Massachusetts | Registered: Mar 2019 | IP: Logged |

Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338

posted

Another poster, bcb1200, advised you of her bad experience with this medication.
"Turns out the drug made my WBC plummet to near zero (a known side effect.)"

Your white blood cells (WBC) are needed to kill bacteria and viruses in the bloodstream.
Bacteria like bartonella.

Your coworkers are being supportive, but they don't have the experience to recognize when something is wrong.
So I will be blunt and say something.
You should call your doctor.

One of the reasons you hired an expert to oversee your care is that she knows what to do when something goes wrong.
This is why you pay the LLMD’s the big bucks.

Also, take some pics of the rash to send to her when you email or call the office.
Rash may be a symptom of allergy to a medication.

Posts: 6947 | From Lancaster, PA | Registered: Feb 2004 | IP: Logged |

Mountainsky
LymeNet Contributor
Member # 51857

posted

I'll call my LLMD and request blood work to be on the safe side.

Not sure why she didn't mention it at my last appt.

Posts: 597 | From Massachusetts | Registered: Mar 2019 | IP: Logged |

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