lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
I have been having a tug of war with my primary care over her wanting to see the babs test result from a test ordered at Duke. While Igenex and symptoms still find me very ill with Babs, Duke’s test was negative because it was only IgM positive.
I don’t want any of that passed to other care providers. So I did not release the test result to my primary care. I’ve had 17 years of positive tests from different countries, states, and laboratories.
I did ask primary care for a,standing CMP blood work to keep track of organ function and just went to execute it. Little did I know that amoung the orders she ordered was a blood smear to detect anything in the blood, and cams back negateve on that little blood sample.
Primary care has now, for the first time, written in my records that there is nothing in my blood, including parasites, and underlined “no”
I’m sick, angry and want to throw myself over a large building. !,
Please help me locate any medical literature on failings of babs testing, that it frequently is no circulating in peripheral blood, and so forth.
After a seven year relationship with my primary care doc, I can’t stand to see her again. I need your assistance. I’m lying in bed with five broken vertebrae for months now, new diagnosis of osteoarthritis and degenerative disk disease, so I am not able to sit up and dig in cyberspace, nor do I have brain function ( prescribed pain killers) to sort what I’m reading. I’m too tired and so forth.
Please assist if possible. Thank you to everyone and stay safe.
Posts: 1032 | From North Carolina | Registered: Aug 2003
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I'll move this to Medical Questions so more will see it.
Best wished to you!!
Is it possible to change doctors??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
I’ve been with this lady 7 years. And she’s been great. That is why this punched me in the gut. Take care of you and be safe
Posts: 1032 | From North Carolina | Registered: Aug 2003
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posted
I hate to say it but this doc hasn't helped you in 7 years it's time to move on and get anothere- perhaps a real LLMD or ILADS doc- clearly she doesn't understand Babs and will never be the one to get you on the right path.
I'm no sure why you need any other tests too if you have positive ones from Igenex. Most ILADS docs make a clinical diagnose or test thru Igenex., MDl or Galaxy. As far as Duke- if you had a IGM positive that means current infection so I'm not sure how she can deny that- IGG means past. My docs think the gold standard for Babesia is the Igenex FSh test.
Mine is co chronic though it even shows up as IGM posiitve 1:80 or 1:160 on labcopr or quest. I have had positive FSH tests. She's not going to help you if she is doing this so it's time to find another....
[ 09-14-2020, 06:02 PM: Message edited by: hhealy ]
Posts: 13 | From Bethlehem PA | Registered: Aug 2013
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