posted
So sorry to hear this, orrn!!! Definitely get the heart checked out.
No other symptoms? Did she do a lot of blood work?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
What is your thyroid treatment for Hashimoto's?
I too have/had Lyme & long list of co-infections for 20 yrs. But the HUGE issue hiding behind these infections/symptoms was Thyroid disease and Hashimoto's for years.
Things greatly improved for me when I dug deep into the Thyroid disease world and learned the truth. I had been on the same thyroid hormone for 30 yrs. Education didn't happen until a few years ago for me. The Thyroid disease world is as crazy as the Lyme world. So sad!!!! The right medication for me saved me from he!!.
Please do some serious reading in this entire site above.
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
i have Hashimoto's disease also and am managing my own combination T3 +T4 combination treatment.
this is possible via online pharmacies for the T3 ( Triomel brand from Turkey - well known and quite reliable) and not expensive approx $14 for 100 tablets of 25mcg
I also do periodic testing of the main Thyroid hormones TSH, T3, T4 etc which is also quite affordable - around £50-60 per test in the UK
i found the thyroid information here a good balance of detailed enough to be useful and still easy enough to comprehend.
i was stuck a couple of years ago and i decided to focus more on the thyroid side of things after reading Horowitz latest book where he states his Lyme patients often do not get better unless their thyroid hormones are restored to the ideal range ( and he is not talking about TSH)
Posts: 245 | From UK | Registered: Feb 2020
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Basically, they sell generic versions of medicines that are no longer protected by patents. There is also a page here reviewing the various online suppliers – the one in the link above came out as well recommended.
i would encourage anyone considering this path to learn as much as you can about the thyroid conditions and if your primary care doctor will not prescribe the suitable medication you will at least be in a position to get yourself tested and self medicate with a suitable combination if needed.
combination therapy with both T3 and T4 medications is quite feasible at home.
for example - I currently take a combination of around 50mcg of levothyroxine 1x per day ( T4 prescribed by my GP) with 1x Tiromel 25mcg in the morning and 1.5 x 25mcg of Tiromel in the evening.
this seems to put my free T3 and T4 in about the optimal range ( but be aware that dosing is frequently quite different from person to person so don't take my doses or anyone else's for that matter - you need to get tested)
I worked up to this T3 dose gradually - testing every 6 weeks or so and adjusting as needed. __________________________
I should add i am not advocating other people follow this path.
I do however acknowledge that it is often very difficult to get proper thyroid disease medical treatment in many countries.
And that those with chronic illness and Lyme disease, in particular, may not do well on conventional T4 only medications(ref Horowitz - "how can I get better")
do your own research and tread carefully.
Posts: 245 | From UK | Registered: Feb 2020
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
orrn, you can get Liothyronine genetic T3 from many pharmacies using Goodrx coupon for a fairly cheap price. Skip doing it thru your insurance co. I've done it before when my insurance refused paying for it.
Ex: Liothyronine 25mcg 60 tablets for $22.31 at Walmart with GoodRx coupon.
Lyme folks with thyroid disease need T3 hormone for survival. It's the energy hormone. For whatever reason many Lyme folks bodies don't function (image that) at converting T4 to T3.
Also Lyme seems to take our T4 and convert it into RT3 (reverse t3). If you have RT3 test done and your lab range is high, you will continue to be hypo and your Hashimoto's lab will continue to be sky high.
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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