posted
hello it has been a while since i posted. just brief synopsis - i had lyme back in 1994 and got treated with 2 weeks of iv Rocephin. i did get the large bullsey rash and also bells palsey. i did recover from it i thought.
But in 2000 i started to feel bad and i had a lumbar punction and low and behold i had lyme again.. never had any rash. mind you i do not go into any woods for hiking, i live in the city, and only have gone to long island but again not doing any type of walking in the woods.
I was treated the latter time with 4 weeks of Rocephin. All these years of course when i get tested i am told i am negative..
lately i asked to see the lyme test and i see 4 positive bands if i had 5 i would be treated.. is this possible. i still have aches sometimes, tinnitus for years now..
i believe i need some abx..here are the bands:93 igg, 66 igg, 41 igg, 39 igg,...should i not be treated even a couple of weeks to see if i feel better? any help would be appreciated.
(breaking up the post for easier reading for many here)
[ 12-28-2020, 02:44 AM: Message edited by: Robin123 ]
Posts: 3 | From Douglaston, NY | Registered: Jun 2009
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posted
Welcome back to Lymenet! PM sent for NYC & CT.
So sorry you are going through this once again.You must get properly treated.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Read the books written by the top LLMD, Dr. H titled, "Why Can't I Get Better?" and "How Can I Get Better?". They are an excellent source of information.
Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy them used online.
Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this click the pencil/paper tab, make your changes, then click "Edit Post". Thanks.
Posts: 8981 | From Illinois | Registered: May 2006
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