posted
Guys I have an embarrassing question. And maybe this symptom has nothing to do with Lyme and co but I wanted to ask as never had this ...
Today on 3 occasions I've had pain 'down there' ... Feels like under (eg not below) the clitoral area.
It is NOT painful to the touch (I've had that too last month) at all, just a throbbing pain there no matter what I'm doing. It lasts a few min at once.
Wtf is this?
Posts: 606 | From sw suburbs of chicago, Illinois | Registered: Mar 2016
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Keebler
Honored Contributor (25K+ posts)
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posted
- It could be vulvodynia or related condition.
Things to rule out before jumping there, though it's also vital to learn about it so as to minimize any potentially damaging moves. Nerve damage can be very hard to reverse. Best to prevent or stop in its tracks. Then, if if might turn out to not be this after all, at least you'll have this knowledge if you need it in future - or to pass along.
I hope there will be a day soon where uro-genital matters for anyone are not embarrassing. Remember, we all have body parts and those all serve specific reasons. Where they are by region should never cause embarrassment. It's just body stuff.
If you have constipation or sit too long in a particular chair where pressure is on that point / area . . . consider that these could be the root of pain.
Your gynecologist and your LLMD - BOTH - should be consulted. Not uncommon at all with lyme.
If you are nearing menopause, have your hormones checked. It could related.
If vulvodynia, there can be various causes. Neurological damage or irritation or flare ups (from lyme but also from various other kinds of infections, too) can be one cause. So can various chronic "stealth" infections not limited to tick-borne infections, though.
HHV-6 is often connected.
It could be other factors, too, as you explore the topic with the varoius organizations for this. There is now a newer name to it but the term vulvodynia will start your search. -
[ 02-21-2018, 04:36 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- Also consider ergonomics / posture / habits. How you've been sitting or arranging your body in relation to life on planet earth and its furniture could impact this as well.
If there is some set of symptoms that lead to a logical diagnosis of a "condition" - or if not - consider the body dynamics.
Some gentle yoga poses to help relax muscles and lessen strain on nerves in that region may help. Again, the people at the vulvodynia support groups might have more specific ideas but there are also physical therapists trained in
pelvic floor exercises. Yet, if anything is too painful, don't push it but find another way to address it.
For years vulvodynia was so bad even pelvic floor exercises were just far too painful to endure. I could not even do simple Kegel exercises as it made the vulvodynia worse - and was beyond excruciating so that was just not an option for my case.
Still, for some, this might be all that's needed if it not vulvodynia but other issues with pelvic floor.
If vuvlodynia, causes and symptoms can vary greatly. So can the remedies.
Although you say it's not painful to the touch but throbbing - sounds like nerve involvement and, so it's best to refrain from any sexual activity (even if solo) to see if this calms down.
It could move from internal pain to external very quickly. And it's really hard to back peddle on that. Do not irritate. Do not trade any pleasure for pain for the pain could stick around around the clock - for months or for years. Don't push it. The nerve involvement can be very complex. It demands tender care.
Your doctors should be able to help here, I so hope.
A gynecological exam / pelvic assessment first -- but you might ask if your gyn. is trained in issues of vulvodynia. If not, check around for one who is. Not all are.
It may be more urologcial in nature, too, yet a gynecologist should be able to help determine what is going on and refer you to a urologist if that might be needed.
Some kind of image scan might be helpful, too, to rule out things yet if vulvodynia, the way that affects nerves is not likely to show on any scan. -
[ 02-21-2018, 05:01 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- Cranial-Sacral therapy with someone trained in the UPLEDGER method might be of help.
So, to, training in body mechanics & therapeutic exercises by a certified FELDENKRAIS practitioner who has experience in this matter. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- It may be helpful see the nerve pathway. Wikipedia entries - for a start to learning more:
In a separate thread of yours yesterday you posted about spasms and issues around prozac. See the prozac side-effect / damage nerve involvement, even regarding the pelvic area in my posts there:
[ 02-21-2018, 05:19 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- Avoid all steroids or "biologics" as they dampen the immune system and can make lyme blossom. Even short term, these can cause damage for months and years to come for someone with lyme.
Never take anything that will suppress immune system unless an ILADS educated LLMD suggests and has a full plan to cover the down sides.
Just so you know, in case you have a doctor who is not LL suggest steroids, even topical ointment, that should be avoided -- at all costs. Why?
Topic: what do STEROIDS actually do to those with lyme? Risks, long term damage discussed. Links. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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posted
- I've been focused more on nerve issues. Yet, might this be muscle cramping? If so, all the ergonomic / body posture issues still matter.
Does a heating pad help? [though never put over uro-genital tissues, just the torso lower gut region or lower back]
Yoga gentle stretches / poses. Note word "gentle"
Are you taking magnesium 3 x a day, spreading out the dose? -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Depends on what's compromised/what's causing the pain. If it's at all muscular, taking more magnesium might help.
I stretched out my tight pelvic muscles in a swimming pool for 9 months and got the pain down. I think mine was due to lack of bloodflow and build-up of lactic acid. All that can irritate the nerves.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
Did you mention OXALATES with the vulvodynia??
I'm in an oxalate group and there are tons of people there (some with vulvodynia) who are benefiting from a low oxalate diet.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
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posted
- TuTu - would you please post that link for 6Hypnone?
LymeToo's post is very important. Good point, No, my posts did not mention that possibility. I usually get too tired to cover that part. I did not find it all that helpful when I went super low oxalate for even many months -yet still, I do avoid some things that I know are high.
Some of the patient forums get into that, though and it certainly can matter to some, and matter a whole lot.
I might mention getting enough greens in a different thread of yours, Hypnone, so you might check out the low oxalate ones as you study this. For instance, Kale is better than Chard in this regard. See the patient groups for better detail, though. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I actually do 5 sec on/10 sec off keagels 15 times, then 10/20 sec same thing, everyday to try to help spasms in the muscle inside that goes from front to back (but spasms were felt anally). However This pain is not spasms.
I do have definite nerve issues in hands and feet.
I'm usually standing, sitting Indian style on a bed, or just straight with feet together a bench or chair. I don't really have constipation, more the other way if anything.
I saw my ND today and told her and she pressed in my abdomen and asked some questions and said nothing jumped out at her or was a red flag. I asked if I should see a gyno and they said if you'd like. I can see a normal one or a more holistic one--the holistic one is about an hour away and is not covered however. Had my exam and pap I think in 2016 or 17 and was normal.
I'm not on any steroids I don't think. I think I asked my llnd about oxalates some tims ago and they dudnt seem concerned.
I do have greens each day--normally red leaf or green leaf, romaine, mixed veggies (onions, cauliflower, peppers, broccoli, zucchini, yellow squash, carrots green beans).
I have heard of vulvodynia. Wasn't sure if I matched up. I feel like it's a migrating pain (or it seems) where I had it in my quad, then the next AM under my thumb, then yesterday, down there. All cases were a throbbing pain, somewhere b/t dull and sharp. And 5-6 on the pain scale.
I am taking mag glycinate about 240 mg, in 2 doses.
NP with avoiding sexual activity as I'm too anxious anyway.
I will def look at those links. So next step maybe to make gyno appt?
Posts: 606 | From sw suburbs of chicago, Illinois | Registered: Mar 2016
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posted
Doctors don't usually understand the issues with oxalates. All they can relate it to is kidney stones.
Stay away from spinach, for the most part (didn't see it on your list), carrots and green beans are fairly high if you eat a lot of them. You can boil them and then drain the water off to help reduce the oxalates.
I would also see about lowering the amount of mag glycinate .. there are plenty of other forms out there. Did you see my info on the ReMag? It's on one of your threads.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
I picked glycinate bc its the form used for nerve pain. I have not looked yet no. All my veggies, sand the leafys, are cooked
Posts: 606 | From sw suburbs of chicago, Illinois | Registered: Mar 2016
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posted
If you'd like to try something simple to see if it helps, I take capsules of turmeric everyday to lower pain in joints and muscles. Not sure if it would help lower nerve pain, but it's a simple try.
I get it in bulk at the health food store, dip empty 00-size capsules in it and take one in the am and pm.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
"throbbing" I, myself, would try homeopathic Belladonna 30c, probably just one dose. If it goes away then no need to repeat. Homeopathic Belladonna is for throbbing sensations, usually from a congested vascular source. Stagnation from sitting could back up the blood in the pelvis and that particular area of complaint could be weaker and manifests the throbbing.
Walking, inversion tilt table, putting hips up on a pillow could all get stagnation to reverse.
You could try TUCKS cooling pads. Throbbing could point towards inflammation.
Posts: 764 | From Northwest | Registered: Sep 2014
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I was just thinking - one could kick up the bioflavanoids like Rutin to snug up the vessel tone. Collinsonia root (stone root) also snugs up lower body vascular tone.
One could do one thing at a time to pinpoint what helps.
Posts: 764 | From Northwest | Registered: Sep 2014
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posted
I do take 1500 mg of curcumin daily, for over a year now. I will add those other thing to my list to tell the doc. Could the beladonna be used for any throbbing pains?
Posts: 606 | From sw suburbs of chicago, Illinois | Registered: Mar 2016
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posted
I don't have such a great knowledge about the lyme disease, however I am almost sure that it has nothing to do with the genital pain. There are many other diseases that can actually cause that kind of pain. I remember back when I was in highschool, I had a similar problem actually. I was afraid to tell that to my parents, so I tried to google the symptoms, and try to find a treatment on the internet. Well... that wasn't the smartest idea. The pain was getting so bad, that I had to buy kratom extract. As I remember, urolithiasis was the disease that casued those pains in my case.
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