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» LymeNet Flash » Questions and Discussion » Medical Questions » Constant swaying sensation 24/7

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Author Topic: Constant swaying sensation 24/7
needhelp4
Junior Member
Member # 52250

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Hi guys,

I was hoping someone may be able to help, as this is making me so miserable and I can't cope. I thought things were bad before, but I have gotten even worse the last 8 months.

I went to the ER with chest pain in May and had 3 covid tests, all negative. Chest x ray was normal and EKG too.

I was waking up gasping, having random rashes and getting severe panic attacks. Nothing I have ever experienced before.

In June this swaying sensation started and hasn't gone away since. It is 24/7 and feels as though I am on a rocking boat, my brain and eyes are shaking, and my insides are internally shaking even though I am not moving. I also feel randomly like I am being pulled to the ground. It isn't vertigo as there is no spinning, but when I see things moving it does make me feel sick.

I am starting to wonder if it is MdDS or if I have a CCI issue. I am not sure how these get diagnosed or where to even start.

I have done treatment for mold and lyme and they don't help. I am at my wits end not knowing what is wrong and feel like I am slowly being killed.

When I lay down the sensation gets worse. It is so awful.

Has anyone had this?

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E-

Posts: 2 | From Austin | Registered: Dec 2020  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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Sounds like babesia to me. Classic symptoms.

What is MdDS?

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--Lymetutu--
Opinions, not medical advice!

Posts: 94768 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
needhelp4
Junior Member
Member # 52250

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Mal de Débarquement Syndrome. Weird if I have had babesia this whole time these symptoms started after 7 years?

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E-

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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

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I had this for 6 months when I was sickest. It was lyme and babesia for me.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3105 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
   

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