posted
I’m having horrible leg pain from by lower legs rate pain a 10 out if 10 was diagnosed years ago with sensory nerves damage- I’m on gabapentin 60mg 2 x daily Please help
Posts: 109 | From Western Massachusetts | Registered: Aug 2011
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
If you’re having uncontrollable pain, I would go to the Emergency Room. They should be able to stabilize you.
Your next step would be setting up a pain management office visit. Some practices will do Telehealth appointments.
My fixes for pain are an epsom salt bath, lidocaine patches (they are OTC or script), turmeric, magnesium, heating pads, frozen gel pads, aspirin, Tylenol, Xanax, Advil, etc. plus stretching.
Of coarse you’ve probably tried all these.
Your gabapentin dose is very low. My doc wanted me to increase slowly until I got to 1200 mg a day. The most I could do was 300 mg without getting dizzy.
Tomorrow call your primary doctor for help too. So sorry.
Posts: 2977 | From Florida | Registered: Nov 2016
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posted
Oops —I meant to say 600mg of. Gabapentin
Posts: 109 | From Western Massachusetts | Registered: Aug 2011
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Yeah, that’s sounds like a better dosage.
You could call your doc and ask if you could up that dose.
My last doc wanted me to try ketamine. It’s all out of pocket. It’s the lastest drug they are pushing onto pain patients because they refuse to write scripts for opioids. No thanks.
They have failed Lyme patients for years. Now they are failing pain patients. The misery never ends.
Hope tomorrow is a better day for you.
Posts: 2977 | From Florida | Registered: Nov 2016
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posted
Hi - I have an idea for you, based on what I used to do for pain. Note that we can only try things to see if they will work for us.
I used to use magnets to lower pain. I would wear small ones over painful areas and take the pain down close to zero.
Since lower legs is a larger area, I think that puts you in the category of what a PEMF machine can affect. It stands for pulsed electric magnetic frequencies. It generates them and affects us if we are near the machine. The magnetic impulses help nerves conduction happen again.
We usually hold a coil that generates the pulses. I did around 10 sessions and was able to drop nerve pain way down.
I had to start slow, like 10 seconds exposure I think my first time, because it's powerful! I quickly worked up to a minute, then minutes, then was able to handle an hour in the end.
You would need to find a healthcare professional with the machine - PTs, chiropractors, bodyworkers, pain specialists, etc. Some people are purchasing them at a lower cost range for home use. The one I used had a 400-700 gauss strength - that's referring to the strength of the magnetic impulses. The wearable magnets were at 10 gauss strength.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
Hi! There are a few things that could be causing your leg pain. Lyme disease can cause nerve damage, which could explain the pain you're experiencing. Additionally, gabapentin may not be sufficiently treating your pain. I recommend talking to your doctor about increasing the dosage or changing to a different medication. .......edited the link to a pay site . In the meantime, you could try some home remedies to help ease the pain, such as applying a heating pad or taking a hot bath. I hope this helps! Take care of yourself!
-------------------- ElliotLeblanc Posts: 1 | From USA | Registered: Oct 2022
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
1. Color? If blue (ish) and/or if cold -> get to ER STAT - could be a clot.
2. If nerve related, Gabapentin dose is way too low.I am on 200mg BID for what is similar to an "MS hug" feeling. Long story short...many pathogens use c-di-cAMP which is a regulator for K+ EXPORT Your blood potassium level could be low or high - symptoms are too similar to know for sure - get your electrolytes tested.
3. OTC roll on "Cramp 911"(Mg) online Amazon or at most drug stores has helped me at times.
4. For my ongoing L4-5 pain (genetic narrowing, previous disc surgeries, arthritis), an Aleve TENS unit works miracles.
5. An ointment called Arnicare gel is very effective for me to block pain. It is actually homeopathic, but sure works better than lidocaine/Ben Gay, etc.
7. A CB1 *antagonist* might...Also look for PDE4B blockers.
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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posted
In addition to all the suggestions of prior posters, it may be worth checking your blood sugar regularly.
A family member had neuropathy that became progressively harder to control leading to life interrupting severe pain.
We finally thought to begin measuring blood sugar and he was becoming pre diabetic, but it hadn’t been caught during routine medical visits.
Impaired glucose tolerance and impaired fasting blood sugar is associated with increased neuropathy and nerve damage.
This isn’t to blame the patient because most here are very aware of diet and lifestyle.
However, if blood sugar is becoming a problem, or a patient is becoming prediabetic, it can make pain management difficult.
Our family member was helped by diet, exercise and oral diabetes medication to control blood sugar even though it didn’t impact stenosis and other underlying conditions associated with nerve pain.
Ultimately addressing blood sugar issues made pain control manageable.
Measuring blood sugar and CRP (cardio reactive protein) can provide insight as to whether glucose intolerance and inflammation are factors. CRP came down following blood sugar control.
Posts: 487 | From USA | Registered: Feb 2002
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
sorry you are experienceing this!
I get leg "pains" too.
I have two types
#1- I have had for years and they start like a crampy feeling which can sometimes take over my feet/legs and cause them to contort and cramp up- taking over my muscles and It is v difficult to walk or do anything that helps. In extreme times this pain has gone up to my thighs, but that is rare, and once in a while I feel it in my arms.
Sometimes temperature changes set this off. Using magnesium did NOT help me at ll with this issue.
one time I ate some molassass and I had the worse attack ever. I suspect it is somehow linked to calcium , for me, or vit. D perhaps, but I have had this for decade or more and no dr. has any clue .
For this I found walking around if possible, can help a little and applying a hot moist towel can help. I slo find almost instant relief from this type when I use a homeopathic supplement from Hylands for leg cramps. I think it is the night time formula.
#2- started about a year or two ago and is more like the feeling of rocks trying to go through my veins . this type usually only stays around the area of my ankles and maybe halfway up my calf, but once or twice went up to my groin.
I think when I had covid it went a little crazy and was all over.
I think that this one is from my babesia duncani. It feels like it is totally veinous and not much helps this at all except I did notice some help from hot moist towle (slightly) and definitely found more relieaf from taking
extra dose of my nattokinase. which is another indication it is related to blood/veins, in my mind.
I also found be accident some info on what sickle cell anemia feels like and it is exactly that same feeling to me.
I also want to mention that I have a genetic counselor that found for me that I have a red blood cell clumping disorder , and he agrees that this all could be this attack I get on top of the blood pathogens I have (b.duncani, bartonella) that coagulate the blood.
I am on Nattokinase, boluoke, and fribenogen to all help with my clumpy blood.
I did not find gabapenticn relieved these symptoms for me as they are not neurological in nature. so if your pain is neurological then the gabapentin should help, one would think.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
oh , and I'd like to mention that I also have sensory type nerve damage/pain in ankles/skin that come and go.
not sure if that is related to the other pains I get at all though. I really don't think they are for me.
I hope you find answers
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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