posted
I accompanied a friend to see Naturopath P in Mystic, CT. When my friend called into the office ahead of time, she was told that all their practitioners used the Buhner protocol. The experience was cold, impersonal and eye opening.
Stephen Buhner lists this practice on his Website as using the Buhner protocol. This practice, in my opinion, is doing a disservice to people looking to use his protocol in the treatment of Lyme Disease and its co-infections.
My friend cannot tolerate antibiotics and wanted treatment for Lyme Disease. She has slowly started aspects of the Buhner protocol with good results. My friend's IGenex test reads that 4 of the Lyme bands are indeterminate on her IGM. She has thyroid issues, gut issues, neuropsych. symptoms, insomnia, multiple chemical sensitivities... the list goes on.
After looking over all of my friend's tests, Naturopath P came up with diagnosis of fibromyalgia. She said the IGenex tests were extremely borderline for Lyme. My friend explained that she was on Cortef when she did the blood work which may have altered the results. Naturopath P said the Cortef would not have been a factor. For treating Lyme, Naturopath P suggested antibiotics.
When asked about using the Buhner protocol, Naturopath P said they did sometimes use it ...with disappointing results. She also questioned my friend's reason for using Red Root. Anyone familiar with Buhner's protocol, understands it is part of the core protocol and is used for anti-inflammatory, lymph drainage and detoxing effects.
Naturopath P also wanted my friend to test at Quest for Lyme and co-infections, rather than IGenex. Naturopath P demonstrated a lack of knowledge and experience in the Buhner protocol as well as in Lyme Disease and its co-infections.
My friend spent $180, and 3 hours of travel time for this one hour consult and walked away with a bottle of ignatia. Hopefully this post will help others who are thinking of seeing anyone in the Mystic, CT office.
"Illnesses, hover constantly above us, their seed blown by the winds, but they do not set in the terrain unless the terrain is ready to receive them."---Claude Bernard. Posts: 131 | From US | Registered: Dec 2006
| IP: Logged |
bettyg
Unregistered
posted
thank you for posting of your bad experience; that will help others when they are looking.
as i told you by pm, i sent info onto others w/lists.
why don't you also contact BUHNER and send them a copy of this link asking them to DELETE this md from their list of those who PRACTICE it!! how else are they going to get feedback!
$180 for 1 hr. and 3 hr. traveling .... could have been much worse for both coasts are $500 - $700! so it was a learning experience the hard way like most of us go thru.
i suggest for your friend to check the SUPPORT GROUPS, left hand side, her state, and closest to her. click on link and see if they want phone calls or emails PER THEIR CHOICE due to their illnesses! that's the best way to get someone good!
please give this to your friend for me!
IP: Logged |
posted
I started seeing Naturopath P in Mystic almost a year ago. (I was already being seen by Dr. P in CT prior to going to her) So she never questioned whether I had lyme as in your friends case (I have never tested positive). I wanted her to be give me what I needed to boost my immune system. She gave me many supplements from what she read of Buhners book "Healing Lyme". She said it may or may not work. It certainly did not do any more than what the antibiotics were already doing. I asked her a second visit how to boost my immune system and she said taking probiotics will do that??? I've been having doubts about her and your visit has really confirms my doubts. On my last visit I asked her about my concerns for candida and heavy metals and what and when I should be taking. She said to just stay on the antibiotics for now and later we will take care of the other stuff. I also asked her about homeopathy and she wasn't very helpful with that either. I wonder if my lyme would be much better right now if I had been doing something different. Is there a better naturopath Dr.(lyme) in southeastern CT? Is there a support group in southeastern CT?
-------------------- Margaret Posts: 103 | From CT | Registered: Feb 2007
| IP: Logged |
"Illnesses, hover constantly above us, their seed blown by the winds, but they do not set in the terrain unless the terrain is ready to receive them."---Claude Bernard. Posts: 131 | From US | Registered: Dec 2006
| IP: Logged |
bettyg
Unregistered
posted
got lyme,
here are your choices found in LEFT HAND COLUMN, SUPPORT GROUPS BY STATE!
i keep forgetting to PASTE web sites lately; so sorry!
notice the 1st group listed is for SE CONN., click on link and contact the support group leader for help; i've heard her name a lot!! a real lyme activist! Kathleen Dickson **********************
IP: Logged |
posted
I did send an email to the website listed but it wouldn't go through. I will try the phone number later this am.......it's only 6:30 right now. Thanks!
-------------------- Margaret Posts: 103 | From CT | Registered: Feb 2007
| IP: Logged |
bettyg
Unregistered
posted
margaret,
yes, please wait until after lunch before calling since we all have this NO SLEEP periods we're all going thru.
when you get the person on the phone, please let them know your email did NOT go thru in case they need to do something on their end
or if SUPPORT GROUP PAGE HERE NEEDS TO BE EDITED! thanks!
IP: Logged |
The phone number for Kathleen Dickson (Southeastern Ct support group) is no longer in service.
Does anyone know how to get in touch with her?
Margaret
-------------------- Margaret Posts: 103 | From CT | Registered: Feb 2007
| IP: Logged |
bettyg
Unregistered
posted
margaret, NO, i don't!
please email [email protected] and advise her about kathleen dickson's phone no. and email will not go thru and ASK HER TO EDIT INFO SHOWN so others don't go thru what you have.
i do know kathleen has been stalked due to being very politically vocal; perhaps that's why both have been disabled.
post in SUPPORT; copy this link there; perhaps someone there can help you; best that i can think of at this time!
IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
quote:Originally posted by Got Lyme?: BettyG,
The phone number for Kathleen Dickson (Southeastern Ct support group) is no longer in service.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)
![[Big Grin]](biggrin.gif)
![[Embarrassed]](redface.gif)
![[Wink]](wink.gif)
Printer-friendly view of this topic