I think i have lymes disease. It has been over three years that I have dealt with what a doctor diagnosed as rheumatoid arthritis. I am 25! I am in constant pain. Things are getting worse, I cannot deal with the pain anymore-my legs feel like they are going to buckle out from under me, and my hands get stuck in a fist at times where I have to physically open them up.
Please help! If anyone knows of a Lymes Disease Dr in Westchester County--please email me.
Posts: 3 | From Westchester, NY | Registered: Jun 2007
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welcome kerin! the board went down 1 wk. ago when lightning hit the server.
you need a western blot igm/igg blood test; we recommend IGENEX, Palo Alto, Calif.
read all the info about them in the PRIVATE MESSAGE, PM, of 58 pages i'm emailing you separately on links, advise, symptoms, tests, disability, much more, and treepatrol's newbie link w/1000 sites of GOOD INFO!
Please go to SUPPORT GROUPS, left-hand side column by state. Click on the nearest group leader for advise. Read if they want emails or phone calls per THEIR request Do NOT email; many are too sick to reply; thanks!
Welcome to LymeNet ... Here is some information that may help you:
Lyme disease is known as the great imitator because it imitates so many other diseases and medical problems and this is sometimes confusing to the average medical doctor.
Also, the tests for Lyme disease are unreliable and many people who actually had Lyme disease received false negatives on tests that are currently available for Lyme however a positive test should be taken seriously as false positives are rare.
A rash (sometimes described as a bulls eye but the rash can take on any shape) occurring within days or weeks of a bite by an infected deer tick is a positive symptom of Lyme disease. The rash occurs in approximately 50% of the people who get Lyme disease. Anyone who has been bitten by a tick or who develops symptoms of Lyme disease should be concerned!!!
The best diagnosis is done by a Lyme Literate Medical Doctor (LLMD). This is a doctor who is highly experienced in the diagnosis and treatment of Lyme disease.
If you are looking for Lyme Literate Medical Doctors (LLMD) I suggest you do the following:
Note: This is Dr. Burrascano's "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses"
My daughter had Lyme disease for over 10 years before she was correctly diagnosed and began treatment. She has regained her health and is symptom free. Her story is at: http://www.angelfire.com/nj/lorib
Hopefully, some day soon, we'll beat this disease. Good luck, Lou Bachman, administrator on leave due to a severe heart attack 12-06
welcome! since this is your 1st post, please tell me more. The reason is we have trolls and spies from IDAS, infectious disease associated society trying to get names, phone nos/addresses so MORE of our LLMD, lyme literate mds can be brought up on charges from that state's health dept. like:
Dr. Jemsek in NC, and Dr. Charles Roy Jones, Conn; almost 2 years of hearings over $250,000+ OUT OF POCKET for lawyer's fee to defend him. Now I hope you understand. If you don't, go to activism and read the posts there about specific drs., especially Dr. Jones who had his LAST hearing in conn! DECISION IN SEPT. whether he keeps his medical license or not.
now please tell us about yourself: *********************************** is this for yourself or a child; what age?
how long have you been sick?
did you have an imbedded tick? a bulls-eye rash?
have you had testing done: western blot igm and igg blood test by:
igenex in calif; md labs in nj; or stoneybrook in ny ... they are the best USA has!
please show all this in your NEW post, and we will help you.
I will send you by PM, private message, my 57 pages newbie links, advise, symptoms, igenex testing, disability, TREEPATROL'S NEWBIE ARCHIVE LINK, and much more!
You can PM me OR ANYONE ELSE, by going to right side of MY/their name shown on this thread, click on 2 people by envelope....that's a PM! Now send me a note asking for my newbie's links, and i'll send it that day or next day at latest unless i'm sick!
be sure to sign BOTH LYME PETITIONS, and ask family, friends, co-workers, church members, orgs, and all you know OVER 18 sign this too.
i'm pretty sure the UNDER THE SKIN LYME DOCUMENTARY is in there, but if not, check right now in ACTIVISM BY KRIS KROFT, one of the folks involved in this important lyme project!
they have a "trailer" to view IF YOU HAVE HIGH-SPEED INTERNET; folk like me with dial-up can NOT view it.
it's 20 minutes long and will give your family/friends extra knowledge what it is like to have lyme and all the political implications plus health insurance NOT paying our lyme bills, appts., labs, blood tests, etc!
you had a wonderful, informative write-up; thanks for telling us so much about yourself. Thank you for NOT posting in continuous long blocks of text that we neuro lymies, like me, can not read/comprehend! that is so much appreciated by many of us here.
when you have a medical question, post it there. when you need SUPPORT, post here.
need a LLMD, LYME LITERATE MD, post in seeking dr. and put the STATE and NEAREST LARGEST CITY IN TOPIC TITLE so folks from your state can pitch in right away to help you ok! i'll send you my welcome package before my lyme mind forgets!
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