posted
im new to this site and i have been suffering for a long while now.... would greatly appreciate ANY help finding a LLMD anywhere around here, i do not care how far away it is. need help bad
Posts: 1 | From Florida | Registered: Oct 2007
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posted
is this for yourself or a child and what age?
how long have you been sick?
did you have an imbedded tick? a bulls-eye rash?
symptoms?
have you had testing done: western blot igm and igg blood test by:
igenex in calif; md labs in nj; or stoneybrook in ny ... they are the best USA has!
NOTE: ``F'' Lab in Arizona is great for co-infectionS and costs $250 there vs. Igenex's $1,000 for CO-INFECTION testing there!
PS..someone posted lately that F LAB AND IGENEX HAVE GONE UP IN PRICES, please contact me about their NEW prices! Thanks! bettyg
please show all this in your EDITED post, and we will help you.
HOW TO EDIT: click on PENCIL icon to right of your nickname which opens up subject line and body text! Add all the info from above, go to lower left hand corner to mark box to receive all replies, & click EDIT SEND. You're all done!
Go to SUPPORT GROUPS found in left-hand column, by country, then by state! Check 1st page to see where the various groups are located for your state. CLICK on link closest to you.
Read carefully if support group leader wants you to call them or EMAIL! Many are very sick themselves; so be patient in getting a response from them. Thanks!
SUPPORT GROUPS .... LYME FOR ``YOUR'' STATE! See below!! 8-19-07
You might be interested in joining your online state yahoo group. All are set up the same way with the state name and lyme run together as one word, http://health.groups.yahoo.com/group/STATENAMELYME, e.g. newyorklyme,
except for 4 states which have a hyphen between the statename and lyme, e.g. southcarolina-lyme. Those states are SC, WY, ND, SD.
The groups were set up by Phyllis Mervine of CALDA, Calif. LDA, to help create an infrastructure for the Lyme community for patient support, local resources, and political action. thx Phyllis!
Welcome to LymeNet ... Here is some information that may help you:
Lyme disease is known as the great imitator because it imitates so many other diseases and medical problems and this is sometimes confusing to the average medical doctor.
Also, the tests for Lyme disease are unreliable and many people who actually had Lyme disease received false negatives on tests that are currently available for Lyme however a positive test should be taken seriously as false positives are rare.
A rash (sometimes described as a bulls eye but the rash can take on any shape) occurring within days or weeks of a bite by an infected deer tick is a positive symptom of Lyme disease. The rash occurs in approximately 50% of the people who get Lyme disease. Anyone who has been bitten by a tick or who develops symptoms of Lyme disease should be concerned!!!
The best diagnosis is done by a Lyme Literate Medical Doctor (LLMD). This is a doctor who is highly experienced in the diagnosis and treatment of Lyme disease.
If you are looking for Lyme Literate Medical Doctors (LLMD) I suggest you do the following:
Note: This is the "LymeNet Guide to Lyme Disease". This document will give you a good overview of Lyme disease, the symptoms and treatment recommendations.
If you need additional information, click on the "On-Line Library" topic on the left menu bar.
Note: This is Dr. Burrascano's "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses"
My daughter had Lyme disease for over 10 years before she was correctly diagnosed and began treatment. She has regained her health and is symptom free. Her story is at: http://www.angelfire.com/nj/lorib
Hopefully, some day soon, we'll beat this disease. Good luck, Lou Bachman, administrator on leave due to a severe heart attack 12-06
welcome! since this is your 1st post, please tell me more. The reason is we have trolls and spies from IDSA, infectious disease society of america trying to get names, phone nos/addresses so MORE of our LLMD, lyme literate mds can be brought up on charges from that state's health dept. like:
Dr. J in NC, and Dr. J, Conn; almost 2 years of hearings over $1 million OUT OF POCKET for lawyer's fee to defend him. Now I hope you understand. If you don't, go to activism and read the posts there about specific drs., especially Dr. J who had his LAST hearing in conn! DECISION IN SEPT. whether he keeps his medical license or not.
I will send you by PM, private message, my 78 pages newbie links, advise, symptoms, igenex testing, disability, TREEPATROL'S NEWBIE ARCHIVE LINK, and much more!
You can PM me OR ANYONE ELSE, by going to right side of MY/their name shown on this thread, click on 2 people by envelope....that's a PM! Now send me a note asking for my newbie's links, and i'll send it that day or next day at latest unless i'm sick!
be sure to sign BOTH LYME PETITIONS, and ask family, friends, co-workers, church members, orgs, and all you know OVER 18 sign this too.
i'm pretty sure the UNDER THE SKIN LYME DOCUMENTARY is in there, but if not, check right now in ACTIVISM BY KRIS KROFT, one of the folks involved in this important lyme project!
they have a "trailer" to view IF YOU HAVE HIGH-SPEED INTERNET; folk like me with dial-up can NOT view it.
it's 20 minutes long and will give your family/friends extra knowledge what it is like to have lyme and all the political implications plus health insurance NOT paying our lyme bills, appts., labs, blood tests, etc!
you had a wonderful, informative write-up; thanks for telling us so much about yourself. Thank you for NOT posting in continuous long blocks of text that we neuro lymies, like me, can not read/comprehend! that is so much appreciated by many of us here.
when you have a medical question, post it there. when you need SUPPORT, post here.
need a LLMD, LYME LITERATE MD, post in seeking dr. and put the STATE and NEAREST LARGEST CITY IN TOPIC TITLE so folks from your state can pitch in right away to help you ok! i'll send you my welcome package before my lyme mind forgets!
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The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
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