posted
Nice to meet you all. My name is Kathy. Honestly I joined this group to try to find someone with some similar problems as mine. I have been diagnosed with a seizure disorder that affects my ability to speak and reason and leaves me severely disoriented. In minutes I can turn from a normal person to someone who appears mentally retarded. The affects of the so called seizure can last from hours to days and when it wears off I am fine again. It has been happening so frequently it's disrupting my life and my work. Stress, weather changes, fatigue, not eating enough, alcohol and caffeine are some of the triggers. A psychiatric evaluation assured me this is not psychiatric. I have swollen joints and fatigue, weakness, stomache trouble, menstrual disorders and a whole myriad of unexplained symtoms. Tests for Lupus, rheumatoid arthritis and Lyme disease all came back negative and I'm at my witt's end searching for answers. I don't want to just settle for a diagnosis for a seizure disorder when I feel so sick. There are times it is in remission and I feel fine even for months. I have a positive lupus anticoagulant but negative ANA and elevated eosiniphils. I just don't know where to get help anymore because I don't know what's causing it. I'd appreciate any ideas anybody may have.
Posts: 2 | From new york | Registered: Nov 2007
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bettyg
Unregistered
posted
welcome kathy! glad you found us.
our lists are NOT set up by COUNTIES; it's by CITIES. so please show in the TOPIC line what is the LARGEST CITY closest to you? NY has many llmds in state.
to edit your post, go to PENCIL/PAPER ICON to right of your name here. click it which opens up both subject line and body text.
add largest city name there and delete the county name.
while you are in there, could you break up your solid block text paragraph into short paragraphs for us neuro lymies who can't read solid block text. 3-4 sentences unless you are a WORDY person, then 1 sentence is a paragraph.
thanks so much kathy for helping us help YOU!
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