posted
I've had 5 months of illness with 95% of lymes symptoms. Had lyme titer with negative result, went to University of Chicago, negative result again with titer. Asked the doctor to do spinal, not getting anywhere with any docs!! Was diagnosed with thyroid problem, however, I have been on antibiotics & steriods off & on the last 5 months.. I was bit by a tick, then got rashes for 3 months along with bed ridden illness.. I'll take any advice, helpless in Indiana!!
Posts: 1 | From Indiana | Registered: Dec 2007
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posted
I too am new here and live in Indiana. I have heard great things of a LLMD named Dr. C in Springfield, MO. Looked into an appt but it is really expensive.
I am curious to know why everyone says to stay away from steroids. My family doc has had me on a dose pac and one shot that lasted 30 days. I feel better while on them but when I come off of them I feel terrible. Any insight???
Best of luck to you and your recovery.
Posts: 124 | From Indiana | Registered: Oct 2007
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Michele, steroids drive the infection deeper and make it much more difficult to treat.
I hear good things about Dr. C in Missouri. I live in Ohio and travel to NY for treatment. There just isn't anyone in Ohio and Indiana willing to treat right now.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Steroids suppress the immune system so it doesn't work the way it should (i.e. killing off the bacteria). Lyme disease gets worse on them.
Go where the LLMD's are (even if it is expensive and you need to travel). You MUST take your healthcare into your own hands.
You CANNOT wait around for some useless duck to waste your time and money (they'll probably tell you "it's all in your head"!!!!)
Take it from someone who knows ("Been there, done that!"). God bless and I wish you well.
Posts: 8981 | From Illinois | Registered: May 2006
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map1131
Frequent Contributor (5K+ posts)
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posted
Jane, did you get alot of info? Do you need any more opinions? I'm in Louisville, KY.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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I too live in Indiana. I have been trying to find a LLMD for months now. I have been all over the internet trying to find someone who I can see even several hours away. I had an EM rash and flu symptoms in Oct of 2006. I was sent to a derm who did a biop of the bite and determined that it was a tick bite. He gave me some antibiotics (only a 3 week course) and didn't inform me at all about Lyme. I thought I was cured. I felt like crap for a long time and finally started doning research and gaining knowledge about Lyme. I went back to my doc who ran tests (ELISA included) and determined that I was fine. I have a very high deductable on my insurance and no money. these tests put me in debt. I can't afford to keep seeing docs and testing for all sorts of things. I KNOW I have lyme, I even have pics of my rash but my docs won't treat me. Please anyone who can help!!! I need a doc. who I know will treat me upon seeing him/her I can't afford to keep this game up and I just need relief of my symptoms. Anyone who can help me please email me!!! thanks too all!!!
Kristin
Posts: 1 | From Indiana | Registered: Jan 2008
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If someone can recommend a LLMD who will do monthly phone appts after the initial consultation, then you could travel to say NY for the initial consult and then just do the phone consults thereafter.
I am in NJ and I don't believe my LLMD does phone consults.
Anyone see a LLMD that will do phone consults after the initial visit? And whose consultation fee isn't several hundred dollars?
-------------------- Jennifer Posts: 266 | From Ocean County, NJ | Registered: Aug 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Kristin, where are you in Indiana? I'm in Louisville, KY. Are you close? Or are you closer to northern Indiana, middle, southern?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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