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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » New to Lyme

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Author Topic: New to Lyme
Junior Member
Member # 15298

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I have just been diagnosed with Lyme disease by my rheumatologist. Ten years ago I had knee swelling and pain, went to Dr. L and had tests done (including Lyme). Lyme test was negative and she started treating me for rheumatoid arthritis. It has been under control except for one time when off medication for pregnancy. Well this time I swelled up and the meds were not working. We tested again for Lyme and once again it was negative in the blood. We also test my synovial fluid in the knee and that was positive. I am now on antibiotics (4 days in) and desperately waiting for the swelling to go down. I am going in to the MD to have the knee drained again because I can not walked or bend my knee. I don't think I have any other symptoms, but who knows. I don't know if my synovial fluid was lyme positive 10 years ago? I have had 2 kids since then and are they affected? I am searching for an LLMD in the DC metro area who is also familiar with arthritis. My concern is that my MD is treating me appropriately.
Posts: 2 | From North Potomac, MD | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
Member # 743

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Unless your MD treats tons of Lyme patients, I would go elsewhere for quality care.

I'm amazed that this rheumie actually tested you for Lyme.... not once but twice [or was it 3?].

It will take a long time for you to recover since this has likely gone on for 10 yrs. And Yes, I would get the kids tested.

Do they show any symptoms??

I'll PM you with some names.

Opinions, not medical advice!

Posts: 95978 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator

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WELCOME, would you like a FREE copy of my newbie package of 118 pages info galore sent by a PRIVATE MESSAGE here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?

I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!

also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.

most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!

If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!

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