posted
Hi, Just registered yesterday when browsing looking for help. I was bit 2 years ago in neck/back of head. Felt horrible a few weeks later, swollen lymph node in neck/shoulder area, severe pain entire body, touch to my skin even hurt, extreme exhaustion, treated even though I didn't test positive. 1 month round of antibiotics, 3 months later felt horrible again, another round of I believe the same antibiotic. Then many tests, MRI, blood work, etc.....basically felt like I was crazy & lazy. Diagnosed with fibromyalgia. Then read something and I went to dct on Monday and said I thought I still had lymes, tested 1.2 and now they are running Western Blot. We have had 2 horses and dog with lymes in addition to me. Looking for doct in Big Lake, MN area (35 miles nw of Mpls). Thanks!
Posts: 1 | From MN | Registered: Jul 2008
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posted
Your symptoms continued becuase you still had lyme and or co-infections. The same thing happened to me. Now Im getting proper treatment and was Dx with babesia and bartonolla.
-------------------- Positive 10 bands WB IGG & IGM + Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest
posted
Right Lymetoo! Personally I think they rain down also. People will argue, but when we broke for lunch on the Pacific Crest Trail, we tied our horses to manzanita as tall as trees.
When we finished lunch the seat of my saddle (which had a white fleece cover on it) was absolutely covered with ticks!!
They HAD to have rained down from branches above. Geeeze...I thought I found a nice shady place for my horse. Poor Baby!
Peedie
Posts: 641 | From So. CA | Registered: May 2008
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bettyg
Unregistered
posted
WILLOW, welcome; so glad you found us!!!
check my profile for my private message of llmds for MINN., WISC., MISSOURI! ****************************
peedie, our lists are set up by CITY NOT county! so please tell them this in future ok. counties mean nothing to us.
willow, please edit your post and break up solid block post into small paragraphs; instructions below; big thanks........
WELCOME, would you like a FREE copy of my newbie package of 124 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?
I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!
also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.
most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!
If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you! ******************************
we recommend 6-12 WEEKS of doxycycline antibiotics; 2 months symptom FREE before stopping antibiotics. *******************************************
Also, please be VERY SPECIFIC in subject line what you will be discussing.
Examples: on doxy and biaxin; need feedback:
My western blot igm/igg blood tests from ....lab; list them going DOWNWARD not across.
18 + 41+++ 45 IND
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying so we all must manage our time well; so specific titles get our time/replies. NON-SPECIFIC ONES, I SOB, SCROLL ON BY!
When you post or reply, please break up your solid, continuous block text
welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.
NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.
IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.
specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. *******************
please go to dr. burrascano's 05 lyme treatment guidelines and print out pages 17-18 ,,, where it talks about dosages for KIDS and adults!!
Please go to SUPPORT GROUPS, left-hand side column by state. CALL the nearest group leader for advise. Do NOT email; many are too sick to reply; thanks!
People seeking doctors in certain states might be able to get help from their state online information and support group. Over 1500 people belong to these state groups. Many of the groups are small but quite a few have 20 or more people on them.
Type your state name and lyme as one word, e.g. newyorklyme
For SC, SD, ND and WY, put a hyphen between the statename and lyme, e.g. northdakota-lyme
The groups are moderated so you have to apply, and we don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately. ***************
I want to make sure we have whoever on our NATIONWIDE LLMD list, which I have also with 12 other folks.
If you call any of the names where we do NOT have complete info, please ask the following and furnish me when you are done so we can add it to our nationwide llmd lists!! THANK YOU!
if you end up calling any above WITHOUT COMPLETE INFO, would you get the following IF possible from them??
we need full name SPECIALTY street addy city, state
phone no. fax no. web site or email if possible
cost per hour for 1st visit cost for followups
do they take insurance? what kind? treat by IV or ORAL?
thanks for helping us add to our drs. of around 300 nationwide who are LLMD!
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otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. ![[Frown]](frown.gif)
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