posted
Hi, this is going to be long so I apologize in advanced for the length of this.
Goal: To get a second opinion about treatment for Lyme/co-infections and hives
My doctor is an LLMD in northern CA and she is excellent. That being said after 3 years of intense therapy, oral meds, IV for 15 months, and some alternative treatment I am really not much better then when I started. I have had time in the last 3 years where I have felt well, normal, healthy, but since June my health is steadily declined.
Not that I was super normal, but I was able to work full-time and go out on Friday and Saturday night and work out during the week. Now, I can barely make it through the week, don't work out, and spend the whole weekend in bed.
I broke out into hives Sept 1 and still have them. This happened twice before, first week of September both times. Before I was diagnosed with Lyme I was put on steroids and ended up getting shingles, the second time I broke out and vomited everything for 8 months until I was diagnosed with Lyme.
Now three years later, after all this treatment I am broken out again and still testing positive for Lyme. My LLMD has always suspected an underlying virus, but I have been tested for an inordinate amount of virus, immuno-surpressive conditions, and allergies.
She thinks that until we figure out what is causing the hives, we can't cure the Lyme. So I need a second opinion. She doesn't know where to go from here and I don't have a clue about who you see for hives.
To make matters more difficult I am 24 with very little money to spend ( I am broke) and although I have excellent insurance nothing Lyme related is covered. I am considering going out of the state to see doctors, but I don't know who to see. Any thoughts or suggestions would be helpful.
I rarely remember to go on here, so please e-mail me your responses to [email protected]
Thank you, Smiles
Posts: 484 | From Burlingame, Ca | Registered: Sep 2005
| IP: Logged |
merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
up for help
Posts: 3905 | From USA | Registered: May 2007
| IP: Logged |
bettyg
Unregistered
posted
contact phyllis mervine, pmervine name....
she's from calif. LDA; a wealth of info.
click on directory at top type in pmervine click search
will bring up her profile, send her private message from there...
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic