posted
Hello, Do any of you have a suggestion for a good Lyme specialist preferably in the Western half of Texas or in New Mexico. It's an over 8 hour drive for me to go to Houston, so if I can find someone not so far East in Texas, it would be wonderful.
Sincerely, Tish
Posts: 31 | From TX | Registered: Nov 2008
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bettyg
Unregistered
posted
hi tish,
please edit your post by following below instructions and answer these 4 questions please:
1. is this for yourself or CHILD, WHAT AGE? important!!
2. what symptoms are you having?
3. do you have/did have BULLS-EYE RASH?
4. what lyme tests have you had done??
ELISA, WESTERN BLOT IGM AND IGG and WHAT LAB performed them???
please copy these 4 questions to your post and answer each of them.
then we will have enough info to provide info to you!
WHAT ARE THE LARGEST CITIES CLOSEST TO YOU ... give us 6-8 please since i have no idea where these cities are located since i don't live in your state....thanks!
Welcome; i'm so glad you found us!! You've come to the right place for education and support!
Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @ http://www.ilads.org/burrascano_0905.html suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.
please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you! @ http://tinyurl.com/58eyou
Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!
Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.
***************
please go to my newbie links, copy the entire thing, and then print this off....
financial burdens compiled by melanie reber pages 74 - 92; outstanding info there.
also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences. thoughts and prayers headed your way..
POSTING GUIDELINES
When you post or reply, please break up your solid, continuous block text welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.
please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.
now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.
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specifically, delete the first 4 characters of 2ND LINE of a ""
[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox
then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND
we thank you for helping us; otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
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posted
I apologize for being late with this. Just have not had time. Here is my story and answer to your questions:
1. is this for yourself or CHILD, WHAT AGE? important!!
It is for myself.
2. what symptoms are you having?
I have been ill and in poor health for over 15 years now and I seem to be declining more and more in what vitality I have. My immune system is not properly functioning and I have problems with IBS - low digestive immune function and many food sensitivities and allergies. Tests show SIBO and colitis, but no abnormal pathogen. I have much inflammation going on and my life has been a terrible struggle/misery for a long time. I have hypothyroidism, some hypopituitaryism, atrial fibrillation, celiac disease, in constant muscle pain in the back and neck, sleep horribly. I seem to have some dysutonomia, an autonomic nervous system imbalance. I cannot exercise, hike or do anything physical without taking quite a bit of cortef (hydrocortisone). Still, it makes me ill the next day to week after. For a long time I was on the track I was set on by a doctor, who said I had adrenal fatigue. But, in theory, this is supposed to get better in a year or so. But, I have not been able to discontinue the cortef for years. I would not be able to work or function without this anti-inflammatory.
Over the years, I have put huge efforts into becoming healthy to no effect. I eat lots of organic vegetables and other healthy whenever possible. I get it from a local grower. I eat absolutely no junk food and cook everything myself. I have tried so many things that I have run out of ideas. As the years have passed, I become less and less able to tolerate supplements of any kind, herbal remidies, etc. etc. It almost seems like all food is an enemy sometimes.
Recently, I went to see Dr. Hines, a naturpath, in San Angelo, TX. I am running out of options and feel I am dying and the first really bad bug that I get may easily be what kills me. After my conversation with him, it was like a light bulb went on and I had a new path to pursue to try to help myself. He said, "You are doing everything right, but still you're sick. Something is wrong." He explained to me about how Lyme disease ruins your health and could be the cause of everything that is happening to me. Suddenly it made sense - maybe this is why I can't get off the Cortef. We looked at a sample of my blood, where I saw spirochetes. We just saw a few. I have LOTS of questions. I feel I must find someone to fully investigate my situation. Dr. Hines was a bit vague about things and I emailed him my new questions, but have not heard back. He recommended I see Dr. Dalton in Lubbock for more tests, but he did not write down any Lyme tests on his sheet of recommended tests. Possibly Dalton will do this investigation anyway or perhaps Hines was expecting to do these later at his clinic in Mexico. There was some question as to whether much of my problem possibly being caused from old root canal teeth and lots of mercury in my mouth. But, I cannot get those spirochetes that I saw in my blood out of my mind. I need more answers. I did not ask the right questions at the visit, because I have become very skeptical of all doctors and was mostly listening to see if he was really going to offer me something new. I did not realize how right some of the things he said were until I came home and started to look into things.
3. do you have/did have BULLS-EYE RASH?
I am not sure. I do remember a single round red circle rash that later turned into a bulls-eye type skin thing over 20 years ago after working on building a front porch on a house. But, it has been so long ago.
4. what lyme tests have you had done??
None, that's why my request here. Hate to waste my time on a doctor without enough experience or who won't really try to investigate.
5. WHAT ARE THE LARGEST CITIES CLOSEST TO YOU ... give us 6-8 please since i have no idea where these cities are located since i don't live in your state....thanks!
I live in a VERY remote area near Big Bend National Park. Nothing is close to me. 160 miles away is Midland-Odessa. 200 miles away is El Paso. Albuquerque, NM is about a 6 to 7 hour drive. Austin or San Antonio is probably an 8 or more hour drive. Houston is 12 hours. Dallas is about 7 hours. So, this makes flying out of Midland or Odessa to some place also an option. Since I am so far from everything, what difference does it make to go further to Denver, Oklahoma City, Phoenix. So, my area actually is very wide, since everything is a major inconvenience.
Thanks again for your responses. Tish
Posts: 31 | From TX | Registered: Nov 2008
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welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.![[Wink]](wink.gif)
otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.
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