LymeNet Flash: SAN DIEGO LLMD NEEDED; newbie wanting best in Southwest states!!!

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » SAN DIEGO LLMD NEEDED; newbie wanting best in Southwest states!!!

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Topic: SAN DIEGO LLMD NEEDED; newbie wanting best in Southwest states!!!

AnneinSanDiego
Junior Member
Member # 18226

posted

Hi Everyone. Well, I am really not a computer person, but here I am...

It took me over two hours to figure out how to post a message on here...could not find an icon...I guess I will blame it on Lyme.

Still not sure if I am doing this right and if I will then be able to figure out how to receive an answer???

I AM IN DESPERATE NEED OF HELP!!! Please anyone! I am hanging on by a thread...physically and emotionally...

After years and years (30) of ongoing medical problems (the last 8 years with several close calls with long hospital stays).. I just now FINALLY figured out that I have Lyme Disease via IGeneX. My CD57 is 22!

These tests were done by a ND here but they have no clue about Lyme... I got bitten several times when I was 10-12 years old...I am now 41!!!

#1 I need to find a LLMD. I heard that there is only one here in SanDiego, CA...Dr. Y....so I called her...and she is not taking any new clients and so I asked if I could be put on a waiting list...and they said sure...I am #185 !!??**!!@#$*!!!

I was in SERIOUS DISBELIEF! I AM SUPER SICK....#185 waiting list only IF she opens to new clients? I cant do this any longer!!!

I do not want to be this dramatic....but I AM at wits end...for the last month I have done a ton of research on internet & bought several books...read them all and now feel more overwhelmed and depressed because I feel like this whole treatment deal is SO COMPLICATED!! [dizzy]

30 years....AND I have yet...a long, long road ahead of me...is this all really worth it anymore???

...all to then be faced with not even being able to find a doctor to start with!!!???!! And finding out about the whole political deal going on!?!!

I also went through lymediseaseassociation.org and they sent me 3 names...of which two of them do not treat lyme patients anymore because they said 'too risky and too stressful'.

The third one is Dr. H in Malibu. Which is actually really far for me...but if that is the closest then I would be willing to go....BUT ONLY IF HE HAS A GOOD REPUTATION??....I have been to WAY too many doctors to invest anymore time in the wrong direction. Has anyone heard of him or used him??

Thanks for listening!!! I would love any doctor recommendations of the VERY BEST out there....and any other words of encouragement!!! thank you thank you thank you..... [bow]

Lost is San Diego,
Anne

[ 22. November 2008, 04:06 AM: Message edited by: AnneinSanDiego ]

Posts: 3 | From San Diego, CA | Registered: Nov 2008 | IP: Logged |

bettyg
Unregistered

posted

welcome anne; i've come to your rescue!! [group hug]

check your profile for names in san diego area; you have quite a few and 1 takes insurance!!

also, did you mark the lower left hand box to RECEIVE ALL REPLIES? if not, edit your top post by using PENCIL, 3rd box to right of your name, which opens up subject line and body text.

go to lower left hand corner and mark that box now to receive all replies.

also go back to subject line and show:

SAN DIEGO LLMD NEEDED; newbie wanting best!
*****************************************

while you are in there editing, please break up your LONG paragraphs into shorter ones... 2 or 3 out of 1 paragraph since we have so many NEURO lyme folks like me. instructions below ok [Smile]

click edit send! done! this way everyone knows at quick glance what area/state you need and especially those LIVING IN YOUR AREA who can give you the MOST CURRENT info out there!

Welcome; i'm so glad you found us!! You've come to the right place for education and support!

Dr. Burrascano's most recent "Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses" @

http://www.ilads.org/burrascano_0905.html

suggests that you discuss with your doctor continuing treatment until you are symptom free for 2 months.

this link, making the most of your LLMD visit, may help you also.
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005

please see BettyG's newbie package info on the link below; click on link at bottom of my package. Check it out as time permits for you!
@ http://tinyurl.com/58eyou

Fyi: we have over 1000 viewers daily; 200 - 400 posting/replying; so specific titles get our time/replies. non-specific ones, i sob, scroll on by!

Also, please be very specific in the subject line what you will be discussing so more people will be able to assist you.

***************

please go to my newbie links, copy the entire thing, and then print this off....

financial burdens compiled by melanie reber
pages 74 - 92; outstanding info there.

also in my table of contents, for FINANCIAL BURDENS, i believe there are a few more general comments there without links!! print that off too as it's newer info from members thru their own personal, tragic experiences.
thoughts and prayers headed your way..

Betty's POSTING GUIDELINES

When you post or reply, please break up your solid, continuous block text [Smile]

welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.

please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.

now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.

if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.

NOTE: you do NOT have to use "", just show the name of person you are responding to, and then type your comment.

IF you need to use "", PLEASE DELETE "BOLD" CODES so it's regular type text we read vs. the DARK, HARSH/PAINFUL BOLDING.

specifically, delete the first 4 characters of 2ND LINE of a ""

[QB] just delete these 4 characters, and BOLDING is GONE! my eyes will really appreciate that; it's one very bad side effect of my having lyme for 38.5 years!! xox

then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND

we thank you for helping us; [Wink]

otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me.

IP: Logged |

jblral
LymeNet Contributor
Member # 8836

posted

Recommend you join the CaliforniaLyme on-line support group:

http://health.groups.yahoo.com/group/CaliforniaLyme/

There are members in your area who can tell you about doctors.

Also, the California Lyme Disease Association website maintains a list of support groups throughout the state. Check for one in your area:

http://lymedisease.org/california/california_support_groups.html

Posts: 991 | From California | Registered: Feb 2006 | IP: Logged |

Alana
LymeNet Contributor
Member # 14077

posted

Anne,

Sent PM. Hopefully you won't be "lost in San Diego" for long.

Posts: 214 | From where ticks flourish | Registered: Dec 2007 | IP: Logged |

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