I was hiking in an area with a lot of Lyme's ticks about a month ago. I had a strange round/irregular rash for a few days but it didn't look like a bullseye.
Now I've been experiencing severe and unusual muscle pains for the past 2 weeks after any small physical activity. Wondering if it could be Lyme's.
My doctor is clueless with no experience/knowledge on Lyme's but agreed to do a blood test (I'm waiting for the results).
I'm thinking I should go see an LLMD... maybe not a high-priced specialist yet, but at least someone who can make a diagnosis and put me on the right treatment asap.
Any suggestions in the SF Bay Area? I live in Berkeley.
posted
Hi and welcome to Lymenet! Am pm'ing you...
Posts: 13116 | From San Francisco | Registered: May 2006
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bettyg
Unregistered
posted
welcome ocp
check your profile above for SF llmds
please edit your post by clicking on pencil, 3rd post to right of your name, and break up your entire post into many short paragraphs and double space between each paragraph for us neuro lyme folks who can't read or comprehend as is.
please use my guidelines below; huge thanks hugs
i see you've gotten great info from robin! she'll be a big help to you so keep her name handy to refer to ok
Welcome to Lymenet! I'm so glad you found us! You've come to the right place for education and support!
The following is some links that may be helpful to you:
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
This explains the medical politics around Lyme, and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org
They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in. Be sure to download Igenex's required form. MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.
Optional tests include: co-infection panel for your area of country and PCR whole blood
Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.
Betty's suggested posting guidelines: Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend.
For easier reading, please edit your post by clicking the ``paper pencil' icon to right of your user name, which opens up the subject line and body text.
You can break up your longer paragraphs into smaller paragraphs. Please hit ``enter'' key twice after each paragraph, also.
Go to left hand corner and mark box to receive `all replies', and click edit send.
Thank you for posting in a manner that makes it easier for all to read and help others.
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posted
Besides the referrals I suggested today, you can also ask to join the discussion at CaliforniaLyme. www.lymedisease.org - click on Contact Us and ask to be added.
Posts: 13116 | From San Francisco | Registered: May 2006
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Please check your private messages for the LLMD list for California and information regarding ILADS, Dr. B's guidelines and helpful links.
Do join in the discussion in our ``medical section'' for additional help, education and support. It's a great place to learn more about this very complex illness. You can also find your local support group on the left hand side of this web page for additional help.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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