posted
Doctors have diagnosed my Father In-Law with ALS. At the second opinion doctors he was not sure but said he may have Lyme disease. He told him to seek out a Infectious Disease Doctor, but a Doctor friend of mine said seek out a LLMD and that I didn't here it from him. So if anyone knows of a LLMD in the detroit michigan area please let us know. Also, what's the difference between a Infectious Disease Doctor and an LLMD. Thank you.
Posts: 1 | From detroit, michigan | Registered: May 2010
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Hi, mayhem and WELCOME to our lyme site. We're glad you came to us for help.
I have sent you a private message (pm), click on the flashing envelope.
Also, check out our great "Medical Questions" forum where you can ask all the questions you might have and our wonderful, knowledgeable members will answer them. Just read some of the threads and you'll see just how informative they are!
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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Remember to Smile
Unregistered
posted
Hi, Mayhem50. Sorry to hear about your FIL's medical challenges. You are wise to seek out a LLMD. Hug that Doctor friend of yours! We call him "Lyme-friendly."
Lyme-literate doctors (LLMD's) are trained by the International Lyme & Associated Diseases Society (ILADS) and follow ILADS guidelines for diagnosing Lyme disease & associated co-infections. LLMD's also follow ILADS treatment protocols rather than the dangerously restrictive IDSA guidelines.
To get oriented to the huge, confusing world of the Lyme Disease Complex, here are a few suggestions:
- See the 2009 multi award-winning documentary "Under Our Skin" asap. It can be purchased from their website or rented thru NetFlix. Truly an eye-opener!
- Read "Cure Unknown" by Pamela Weintraub (2008) asap. You can borrow it through your library system. This book and the DVD above are often given to political representatives to help them understand the realities of untreated chronic Lyme disease in America today.
- Go to www.ILADS.org and explore that whole site thoroughly. You'll find links to many informative research papers and free brochures to download and share.
- Go to www.lymediseaseassociation.org and explore that site and links, too. The LDA is based in NJ, but it is a national organization. now.
- Look on LymeNet for "Newbie Links" to get oriented quickly.
- Post more questions as you & your family have them under "General" or "Medical" here on LymeNet.
I'm not a healtcare professional, just another under-treated Lymie. imho, ID doctors and non-LLMD general practitioners have been brainwashed by corrupt individuals and corporations. The difference is LLMD's consider ALL sound science regarding Lyme disease, but ID docs & the IDSA considers very little science. The IDSA appears focused on saving insurance companies money to the detriment & devastation of thousands of Americans. It's horrid.
You can find hope and helpful ideas on LymeNet. All best wishes, Smile
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