I am a 29 year old mother of 2 boys ages 7 and 10. I've been sick off and on since I was 15.
That is when I had flu-like symtoms, extreme fautigue and body aches. Everything got worse after each birth and finally in 2005 I was completely wiped out. I had 90% of the symtoms listed under nuero lyme.
All of my test came back normal-blood, MRI, gastro etc.I had done a lot of research online and found Lyme, however my doctors refused to test. Even after I told them I had multiple tick bites as a child living in Santa Cruz I was out doors, camping, hiking and bike riding constantly.
After months of tests and doctors telling me I was crazy I still had no answers.
Last year-2010 it became so bad I could not work or function. That is when I deciding to seek my own answers. I went to a Fautigue Center here in CA. where they treat CFS, Lyme and other immune issues.
At first he diagnoised me for CFS due to the tests coming back with high exposure to HHV-6, Mycoplasma and EBV. After my second visit he tested for Lyme through Igenex (extremely costly-insurance didn't pay). It came back positive the end of Feb. 2011- Igenex-5 bands, however I needed one more certain band for CDC to recognize.
He started me on Zithromax and Cefuroxime, which I have been taking for almost 2 months with little improvement.
My main question is related to my boys. After finally getting diagnoised I started going back through their medical history.
My oldest (now 10) came out purple and I didn't get to see him for the first few hours because they were running tests. I was so young I didn't know what could possibly be wrong and did not know I had Lyme at the time. He's cried since birth, constant ear infections and restlessness. Over the years he has had Strep many times. He still wets the bed and walks funny; he says his legs hurt. He has nightly stomach aches and headaches. His eyes hurt and he is moody. I want to take him to a Lyme specialist for children, but do not know where to start. Everyone in my family thinks I'm crazy and theres no way I could have passed it?
My younger son (now 7) was born fine, however he became ill a few months after birth and continued to have problems over the years. He has swollen glands-constantly, really bad asthma, allergies,a little OCD and has had pneumonia 4 times during a 2-year period.
I don't know if I am paranoid or if I should be concerned. I've always had a gut feeling something was wrong, but was told I was crazy.
If anyone knows of any resources for children, or doctors in CA. I would greatly appreciate it. Their doctor is old fashion and my new doctor does not treat Lyme in kids and seems to specialize in CFS rather than Lyme.
Thank you for any help you can give, Lauren
-------------------- Lauren777 Posts: 32 | From Stockton, CA | Registered: Mar 2011
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