LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Seeking a Doctor » LYME DOC IN CA

 - UBBFriend: Email this page to someone!    
Author Topic: LYME DOC IN CA
Lauren777
Member
Member # 31163

Icon 1 posted      Profile for Lauren777     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am a 29 year old mother of 2 boys ages 7 and 10. I've been sick off and on since I was 15.

That is when I had flu-like symtoms, extreme fautigue and body aches. Everything got worse after each birth and finally in 2005 I was completely wiped out. I had 90% of the symtoms listed under nuero lyme.

All of my test came back normal-blood, MRI, gastro etc.I had done a lot of research online and found Lyme, however my doctors refused to test. Even after I told them I had multiple tick bites as a child living in Santa Cruz I was out doors, camping, hiking and bike riding constantly.

After months of tests and doctors telling me I was crazy I still had no answers.

Last year-2010 it became so bad I could not work or function. That is when I deciding to seek my own answers. I went to a Fautigue Center here in CA. where they treat CFS, Lyme and other immune issues.

At first he diagnoised me for CFS due to the tests coming back with high exposure to HHV-6, Mycoplasma and EBV. After my second visit he tested for Lyme through Igenex (extremely costly-insurance didn't pay). It came back positive the end of Feb. 2011- Igenex-5 bands, however I needed one more certain band for CDC to recognize.

He started me on Zithromax and Cefuroxime, which I have been taking for almost 2 months with little improvement.

My main question is related to my boys. After finally getting diagnoised I started going back through their medical history.

My oldest (now 10) came out purple and I didn't get to see him for the first few hours because they were running tests. I was so young I didn't know what could possibly be wrong and did not know I had Lyme at the time. He's cried since birth, constant ear infections and restlessness. Over the years he has had Strep many times. He still wets the bed and walks funny; he says his legs hurt. He has nightly stomach aches and headaches. His eyes hurt and he is moody. I want to take him to a Lyme specialist for children, but do not know where to start. Everyone in my family thinks I'm crazy and theres no way I could have passed it?

My younger son (now 7) was born fine, however he became ill a few months after birth and continued to have problems over the years. He has swollen glands-constantly, really bad asthma, allergies,a little OCD and has had pneumonia 4 times during a 2-year period.

I don't know if I am paranoid or if I should be concerned. I've always had a gut feeling something was wrong, but was told I was crazy.

If anyone knows of any resources for children, or doctors in CA. I would greatly appreciate it. Their doctor is old fashion and my new doctor does not treat Lyme in kids and seems to specialize in CFS rather than Lyme.

Thank you for any help you can give,
Lauren

--------------------
Lauren777

Posts: 32 | From Stockton, CA | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Information sent!!

Please read in Medical Questions for great information and help:

http://flash.lymenet.org/ubb/ultimatebb.php/forum/1

Each forum also has special links at the top of each page containing information you may find helpful.

 -

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95649 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
norcal
LymeNet Contributor
Member # 29829

Icon 1 posted      Profile for norcal     Send New Private Message       Edit/Delete Post   Reply With Quote 
I sent a pM for you
Posts: 342 | From northern california | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.