posted
I live in New York, but spent alot of time in Kentucky growing up. While visiting there in 1994 I found 2 ticks on my legs. Two weeks after returning to NY I was so sick with body aches, head aches and exhaustion I literally could not get out of bed. I was 24 years old. I went to the doc but was told lyme was highly unlikely because I did not have a rash.
Since that time I have had what I refer to as "flair ups". Sometimes staying in bed for 2-3 days, unable to lift my head, unable to get out of the fog I had in my head.
I never drank, smoked or did any kind of drugs. Overall healthy, but overweight.
Several years ago I started to notice tingling in my extremities. I would feel a "tickle" in my hands and feet. I was always "aware" of my extremities. I found that odd.
Foot pain has been part of my life the last 8-10 years. They have gone numb, they tingle 24/7, burn beyond words and the pain is unbearable. Twice I have been reduced to using a walker to ambulate. I have seen 2 orthopedic foot surgeons who say I have healthy feet. I had bilateral emg on my feet. This showed no evidence of neuropathy of any kind.
However, I then saw a neurologist who stated I have neuropathy and bilateral CTS in my hands. I informed him of the EMG results, to which he responded "Donna, if it walks like a duck, and quacks like a duck". I was infuriated that he dignosed me w/ neuropathy based on my symptoms,and disregarded the EMG results.
Since tht time I have been dignosed w/ diabetes. I am not insulin dependant. My sugars are beautiful. A1c is consdered ideal.
About 8-10 years ago my heart began beating rapidly...about 118 resting. I saw a cardiologist who did a series of tests. The monitor confirmed my rapid heartrate, but no explenation could be found as to why. I now take a beta blocker to slow it down.
End of last year out of desperation I started seeing a rheumatologist. Based on all my tests the last 2 years she diagosed me w/ fibromyalga. I WAS MORTIFIED! Just like the neurologist she wanted to put my on neurotin, which i refused.
My pcp perscribed Savella (for fybromyalgia), 50 mg twice daily. It helped for 6 months but seems to have stopped.
Something in my mind clicked resently and I recalled how terrible I felt after the 1994 visit home to KY. I read up a little bit about untreated lyme disease and I am almost convinced that is what I have.
I work in the medical field so I am cautious not to self-diagnose. I need help finding a doctor in the western New York area.
Any information would be greatly appreciated.
Posts: 2 | From New York | Registered: Apr 2012
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
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I sent you a private message.
Posts: 4681 | Registered: Oct 2000
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