posted
I've endured a mystery illness, no diagnosis despite many doctors visits for a number of years. I've been told my illness 'exists somewhere between my ears!' My symptoms meet many of LD criteria, and with quite a shock today I realized I have had two bulls-eye rashes, between 6 and 10 years ago, during a spell living in europe. I had no idea! Would be grateful for a recommended LLMD in MA or NH. Thanks in anticipation....
Posts: 2 | From MA | Registered: Jun 2012
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"It's all in our head" is a typical diagnosis by non Lyme-literate doctors when they don't know what it is! They have no clue about this horrible disease or its complex treatment.
posted
Thanks for your responses so far. Very kind of you to get in touch. Went to normal doctor as so unwell over weekend. Just on symptoms alone he sent me for Western Blot test for Lyme. I was surprised. However blood work taken at local hospital came back negative. Is this test definitive or should I ignore this result and continue with a LLMD ?? I would still be grateful for any doctor recommendations, perhaps New Hampshire, as a little closer to home..... Thanks again!
Posts: 2 | From MA | Registered: Jun 2012
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AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
Ignore that result. It was likely the ELISA test which has a 60% false negative.
You may have long term "chronic" Lyme, you NEED an LLMD!
Posts: 1432 | From New Jersey | Registered: Jan 2012
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