posted
My symptoms started in February 2012. After a trip to the ER, I was diagnosed with "sinusitis". My symptoms came on so suddenly. I never had any yellow snot coughing runny nose. But somehow on the CT scan it showed my right sinus was completely clogged. I went on Avelox and prednisone but things kept getting worse. Finally, my ENT performed balloon sinuplasty on me. I started to feel better then there were two to three days I felt great after my surgery and stopping the Avelox. Then my symptoms came back head on. My main symptom was a headache and constant pressure in my head and sinuses. Keep in mind, still no snot, coughing, runny nose, sore throat. Over the next 6 months, my symptoms would change, evolve, and develop into new ones. Intense eye floaters, tinnitus, ear pain, heart burn, heart pain, sharp lung pain, neck stiffness, leg twitching, eye twitching, blueness around my eyes, swollen tonsils, forgetting or using the right words in a sentence, forgetting peoples names, pulsating pressure in my head, etc. My worst symptom has been the constant headaches and pressure in my head.
I have had allergy testing done. I am allergic to some trees but I have suspecting I always have had allergies my whole life (itchy eyes from time to time). I saw a neurologist, and my MRI came back clear. I saw a chiropractor. He said my neck needed some work.... after 8 visits no relief.
Finally, I went to the ER again after severe heart pain (of course my EKG came back excellent in the ER). He asked what I thought this could all be and I said Lyme. He said I have two options. I can take the doxycycline and see if I get better or not take it. I decided to take it.
The following week I went to go see an infectious disease doctor, who prescribed me another two weeks. He also ordered the western blot lyme test. When my results came back, it didn't come up full blow positive, but he did say I came up positive for a few strands. He only wanted to treat me for one month then gave up on me.
Since my month of doxy has run out, I have been going to different express care/patient first offices each week saying I have been bitten by a tick "two weeks ago and have been feeling blah blah blah." They then only prescribe me two weeks of doxy because that's what the CDC "says to do". I am on 100mg x twice a day, along with olive tree, resveratrol, vitamin c, green tea, white tea, cats claw, milk thistle, marshmallow root and a few others.
Up until this day, I only have on and off intense head pressure localized on the top of my head, eye floaters, and random chest pain near my heart. To be honest I don't know if it's my actual heart of the tissue around it. My leg also twitches every now and then. It's like a sudden urge to move it.
I have come at a crossroads. LLMD's are $700 in my area (I'm in Baltimore, MD). Is this actually Lyme? Up until a few days ago I thought I was feeling better. I did add a few new herbs to my treatment plan around the time the pressure started getting worse again. Possibly herxing?.... The reason I say I have come at a crossroads is because I don't know if this is Lyme of from mold exposure. There was mold growing behind my ceiling from a previous leak and there was mold in the back room of where I would work at yoga. I've done a lot of research and mold can cause a lot of the same symptoms as Lyme. AND if I keep taking the antibiotics, it's essentially feeding the mycotoxins in my blood stream. In my mind it is back and forth. I got tested from mold allergies and I'm not allergic. I got tested for Lyme and it didn't come up full blow positive. I had another test done at the express care and it came up negative again.
Before all of this started, I was happy and healthy as can be. I am a 22-year-old lean male. I was in my last year of college; I would run 3-4 times a week and practice Bikram Hot Yoga. NO history of any medical symptoms. No headaches ever in my life.
One last thing... my eye floaters look like long strands of bacterias. Odd weird looking circles inside long strands. There are also always 4 perfectly uniform circles floating around no matter how many times I turn my eye. When I look into the light, so many more strands appears. Its sometimes scary. Dead bacteria? who knows.... according to doctors "eye floaters are normal". Wow really, thats so strange it started happening right around the same time as all my other symptoms..
I decided to go pick up my "negative" test results...
Western Blot
IgG
p39 absent
p66 absent
p58 absent
p45 absent
p41 *present
p39 absent
p30 *present
p28 absent
p23 absent
p18 absent
2/5
IgM
p41 absent
p39 absent
p23 *positive
1/3
Unfortunately as we all know, according to the CDC this means a person does not have Lyme. However, I've been reading that p23 is very Lyme specific, as well as p30. I read p41 is the most common for the borreliosis antibody.
Please help me find an LLMD in Baltimore, MD. I'm willing to pay anything.
Posts: 15 | From Baltimore, MD | Registered: Sep 2012
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Sent you some names and some info.
Welcome to LymeNet. We will help you here as much as we can.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
posted
I have read a lot about mold. The only thing is that my symptoms hit me head on pretty hard. It happened all of the sudden. There havent been any other illnesses reported at the yoga studio where I worked where there was mold ( at least not that I know of). Also, while I was in a room in my home that had a leak and some mold, the rest of my family seems to be fine. Last, if I had mold, why have I shown strands specific to Lyme? My LLMD ordered a full round of tests from IGENEX, so I will know soon. Im on 200mg of doxy 2x a day, I have been feeling like crap, so maybe I'm hopefully herxing? I just hope I'm on the right path... I plan on cutting out ALL sugar starting tomorrow. I tried it before and felt so fatigued and weak, but I know it will help starve whatever is in my body. If anyone has any suggestions in between my results, feel free...
Posts: 15 | From Baltimore, MD | Registered: Sep 2012
| IP: Logged |
posted
I have read a lot about mold. The only thing is that my symptoms hit me head on pretty hard. It happened all of the sudden. There havent been any other illnesses reported at the yoga studio where I worked where there was mold ( at least not that I know of). Also, while I was in a room in my home that had a leak and some mold, the rest of my family seems to be fine. Last, if I had mold, why have I shown strands specific to Lyme? My LLMD ordered a full round of tests from IGENEX, so I will know soon. Im on 200mg of doxy 2x a day, I have been feeling like crap, so maybe I'm hopefully herxing? I just hope I'm on the right path... I plan on cutting out ALL sugar starting tomorrow. I tried it before and felt so fatigued and weak, but I know it will help starve whatever is in my body. If anyone has any suggestions in between my results, feel free...
Posts: 15 | From Baltimore, MD | Registered: Sep 2012
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic