posted
Hey everyone, I'm new here and desperately seeking some guidance. I was diagnosed with late stage Lyme in October 2012. Didn't get a diagnoses or treatment until I was faaar to sick. I was lucky to come up positive on the IGg/IgM test at the emergency room but that's where the struggle began.
I have no insurance and had to see a Charity Care physician who's only knowledge of Lyme is 21days of Doxy. Well that didn't do it and my symptoms worsened severely.
Long story short I was able to pay out of pocket to see a dr. That was atleast willing to refill Ab's for me. The doxy didn't do it, so switched to Ceftin.
From Jan. Thru April I've fainted numerous time, had seizures, hullicinations, bells palsy, unable to speak, unable to figure out how a car starts etc. I have improved tremendously ovr the last 3 months but I am still not fully better.
I've hit a plateau and once I completed my 10th course of ab's I stopped for two weeks and the cycle began again.
I can't keep doing this. I am sooo terrified I will become a zombie again and I know I cannot keep taking oral ab's for this long. No insurance to see better dr.s, no more for the iv anitbiotics that I clearly need.
Can anyone tell me of ANY WAY to seek more intense treatment with some sort of financial help...idk.... HELP
At the top of the website where it highlights "ask a question", click on that and you will find support groups of people on this protocal.
Also, if someone knows of a good LLMD in your area, maybe you could contact the doctor, explain you situation, and they will reduce their rates or better.
Posts: 1358 | From Midwest | Registered: Apr 2009
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If anyone qualifies as low income, www.lymetap.com offers 75% off the cost of IGeneX testing.
Posts: 8982 | From Illinois | Registered: May 2006
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Thank you everyone! I am in the process of paying for insurance through my job...so I'm sure that will be a new battle as far as trying to get them to cover things but atleast its a start and I can actually see a doctor who knows how serious this is.
Unfortunately my feeling 'decent' streak ended about 2 weeks ago which is why I have been MIA and I did end up in the ER yesterday, which is a first for me since I was diagnosed.
Usually I am trooper with all my symptoms but this cycle just would NOT quit) and I had another episode that scared the heck out of me.
But thru a miracle I actually had a nurse and a N.P. in the ER that knew allllllottt about Lyme.
Soo I have a lot of tick panels pending to see if I have any co-infections which she does suspect because my RBC and platelets are low. She gave me another month of Ceftin to hold me untiil my insurance kicks in.
Soo hopefully I am on my road to having insurance and get the IV treatments. If anyone has any feedback on how Horizon Blue Cross Blue Shield covers this type of stuff I would love the heads up so I know what to expect. Thank you all.
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Hi Shannon - am breaking this up into a couple lines at a time for easier reading for many here -
posted
I have that insurance and most of meds are denied at the local pharmacy and IV home care not covered past 4 wks
I do have better luck with my antibiotics filling it through the mail order program
Also try to get the PPO or POS plan so you don't need referrals to specialist. This really helps if you don't have a lyme knowledgeable primary doc
Posts: 157 | From Colorado | Registered: Aug 2010
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Thank you so much for the feedback! Just found out unfortunately that my insurance will not cover any Lyme related treatments now until Jan 2014. Sooo I'm back to being pretty helpless. I don't know if I can make it until January without becoming physically inacapable of working. While I am on a 'good' week I am going to try to see what charity care will approve. Idk anymore. This iis soo discouraging Posts: 3 | From Freehold, NJ | Registered: Aug 2013
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A lot of people are doing the Buhner herbs, some who cannot take antibiotics - you might check it out - www.buhnerhealinglyme.com, also Lyme_aid_Buhner is a yahoo chat site.
Posts: 13117 | From San Francisco | Registered: May 2006
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