posted
Hi , I am looking for a doctor who has advanced knowledge with severe gut/digestive issues. I live in TN but am willing to travel. I am looking for someone who is willing to really dig deep and investigate..
My diet: Low carb Paleo, no fruit or other sugar, avoid nuts and seeds but occasionally fall off wagon, no dairy except butter or ghee, no soy.
I have tried zero carb, low FODMAPs, GAPS, low oxolate, antiparasitics ( herbal and medication), fasting, antifungals, probiotics, antibacterials, and more.
Posts: 165 | From TN | Registered: Jul 2011
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map1131
Frequent Contributor (5K+ posts)
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posted
Have you read the article "Bells Palsy of the Gut". Researching this doctor that wrote it, I'm drawing blank at the moment, maybe she could recommend someone in TN for you.
I need to go find her site and post it here for you.
Maybe ILADS has contact of doctor near you. It doesn't have to be a LLMD, just a gastro that gets what Lyme & co does to the GI track.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Virginia Sherr is the doctor who wrote "Bells Palsy of the Gut" based on her personal experience with it. Dr. Sherr is a psychiatrist who had lyme disease. She is now retired. When she was practicing, she lived in Pennsylvania.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Many great gut links here -
Posts: 48021 | From Tree House | Registered: Jul 2007
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map1131
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posted
TF, thank you for that info.
2doggies, I would contact the ILADS and ask for gastro in TN that's lyme aware. How hard should this be? doggie, I'm not speaking of you dear.
I mean to have a doctor aware of GI issues caused by vector borne illnesses. That is not too much to expect and ask for.
2doggie, I will check out my LLMD list and just see if there is possibility in TN. Do you have a LLMD?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
@map1131 - I have read that article and it totally resonates with me. Just not sure what to do about it because finding someone who is really knowledgeable is not that easy. I agree - it shouldn't be that hard. There is a local LLMD but he uses abx to treat Lyme which I was hoping to avoid and his recommendation for my gut was Diflucan and a supplement called Seacure. That was disappointing considering all the things I had already tried at that point, including Diflucan and other antifungals.
@Lymetoo - I have been making my own sauerkraut, beet kvass, and more for years. Have tried fermented coconut water, Kombucha, water kefir, etc. Now I stick to just fermented veggies and eat them daily with my meals.
@Keebler - I will check out those links. Thank you.
Posts: 165 | From TN | Registered: Jul 2011
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posted
@map1131 - I forgot. I was not seeing the local LLMD but have been in treatment with Dr. K in Seattle for 2 years now.
Posts: 165 | From TN | Registered: Jul 2011
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Well, if you have Dr K, which I'm jealous. When I win the lottery that's where I'm going.
Has your body agreed it wants to go with the gut issues yet? Sometimes the body knows what order to go about treatment? And that's why you've not found help?
Or is Dr K suggestions not working? How often are you seeing him from TN to that western state? Much can happen and change in just a month and without someone to guide you it could be very rough.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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map1131
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posted
2doggies, sent you a private message. I see some other possible names.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
I feel the gut issues are of importance. Unfortunately continuing to see Dr. K is not an option anymore as I have run out of money (that I did not have to begin with). I was going to see him every 3 to 4 months and doing phone consults with one of his NDs in between.
Posts: 165 | From TN | Registered: Jul 2011
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