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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » LLMD in NY NJ or CT with ALS knowledge/experience

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Author Topic: LLMD in NY NJ or CT with ALS knowledge/experience
HeathO947
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Hi,

A friend was diagnosed with ALS/Lou Gehrig's disease a few years ago. They recently got a positive Lyme test. I am looking for a LLMD in the New York, New Jersey, or Connecticut area that has experience and the knowledge to treat someone with these severe symptoms.

Thank you!!!
Heather

Posts: 66 | From Dutchess County, NY | Registered: Aug 2002  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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PM sent for NY.

Lyme is called the "Great Imitator", as it mimics diseases like ALS, arthritis, MS, etc. Since the test for Lyme is positive, your friend needs a comprehensive evaluation by a LLMD followed by complex treatment.

The top LLMD, Dr. H, just wrote a new book entitled, "Why Can't I Get Better?". It is full of excellent information.

Also have your friend read "Cure Unknown" by Pamela Weintraub. Check the local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Posts: 8932 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
LuluBelle
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I second the recommendation for Dr H's book. He has a section on ALS.

I have no idea if he is taking new patients but the book says he is in NY

I wish you friend healing

[ 02-10-2014, 09:10 PM: Message edited by: faithful777 ]

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You won't know how sick I was until you see me when I'm well !

Posts: 123 | From Colorado | Registered: Sep 2012  |  IP: Logged | Report this post to a Moderator
HeathO947
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Thank you both for the information. I will pass the info to my friend.

Is there anyone that had ALS that is being treated by a LLMD in the northeast? I would be interested in what type of treatment was given so my friend knows what to expect.

Thanks!

Posts: 66 | From Dutchess County, NY | Registered: Aug 2002  |  IP: Logged | Report this post to a Moderator
HeathO947
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Also, has anyone heard of Dr. F in a New York hospital? My friend was given her name as a Lyme disease specialist. Does anyone know if she is in ILADS?

Thanks [Smile]

[ 02-10-2014, 09:11 PM: Message edited by: faithful777 ]

Posts: 66 | From Dutchess County, NY | Registered: Aug 2002  |  IP: Logged | Report this post to a Moderator
LuluBelle
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You can check with ILADS about Dr F.

Just email them.

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You won't know how sick I was until you see me when I'm well !

Posts: 123 | From Colorado | Registered: Sep 2012  |  IP: Logged | Report this post to a Moderator
   

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