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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Educating those with Lyme and LLMD referrals...

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Author Topic: Educating those with Lyme and LLMD referrals...
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Greetings everyone! My name is a Doll and I have had chronic Lyme disease for almost 3 years now. I saw the bullseye but had no awareness of Lyme disease or what that mark meant. It was very small, maybe 1/4 the size of a dime and went away within 3 weeks or so.

Shortly after that I began sleeping excessively and was diagnosed with chronic fatigue syndrome. 3 months later I felt as if I had been lit on fire. My entire body ached to the touch which sent me back to the doctor only to be told I now had fybromyalgia. Over the next 4 months my joints became incredibly inflamed and very painful.

i was unable to open juice bottles, untwist the cap off of the toothpaste, etc. it seemed everything I reached for I knocked over as I had such limited use of my fingers with my joints being in so much pain. It affected other areas as well such as my knees, ankles and shoulders but none were as nearly bad as my hands. This time I was referred to a rheumatologist.

It was through the blood work panel I had through the rheumatologist that I was made aware that although I suffered the symptoms of the misdiagnoses, I had chronic Lyme disease and two co-infections. The Lyme had almost a year to burrow deep down into my joints and make itself at home.

Curiously I did not have a problem finding an LLMD but through my research I learned that this is not usually the case. I am unsure why there is such mystery surrounding Lyme disease and why we as people are not better educated. For this reason I created a blog recounting my experiences.

Two days ago I was elected a Social Ambassador with the International Lyme and Associated Diseases Society. I am even more steadfast in my mission. I have been charged with encouraging others to share their stories and have that voice count as a possible candidate as a Social Ambassador. Please apply here:

If you'd simply like to join our community to find critical information in regards to you care click here:

[ 02-22-2014, 03:23 PM: Message edited by: Lymetoo ]

Mrs. Doll Lawrence
Social Ambassador
The International Lyme and Associated Diseases Society

Posts: 1 | From Washington D.C. | Registered: Feb 2014  |  IP: Logged | Report this post to a Moderator

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