posted
I'm a 47 year old healthy, active, well traveled male. Normal joint issues from lifelong sports and broken bones. History of migraine and headache. Woke up April 10th with migraine accompanied by intense ringing and pressure in ears, dizziness, slurred speech and multiple vision issues that sent me to the ER. Ruled out stroke etc. recovered, and was sent home.
Since then these symptoms and numerous others have aggressively shown up and persisted. I went to my GP right away and he was very dismissive of my issues. My wife is a cancer surviver so she knows how to find things on the interweb, she did a ton of research and when we saw him again he dismissed her questions as well.
When she asked about Lyme he said, with his arms crossed leaned back in his chair, "its not Lyme, you don't have a rash or bullseye mark". We have since fired his worthless ass!
The reason I feel like one of the lucky ones is that I don't know when I was Infected but I have exhibited symptoms for years but never really put it together, just kinda "pushed" thru it.
But for some reason, on April 10th, it decided to show itself. I have gone thru many test with my neurologist and she finally ordered a lumbar puncture.
She ordered a Lyme test (not sure which one) and it came back negative but for some reason another test was done that she didn't order and that came back positive for acute Lyme.
She said she would've disregarded it but the antibody number was so high that she ordered a Western Blot test. The results for that came back today as positive for Acute Lyme. She said it was serendipitous as if we were in the NE she would've suspected Lyme right away.
My wife and I were suspecting Lyme and were expecting to really have to put up a fight to get the proper testing and treatment and to even find an LLMD.
We feel lucky that that second test was performed and I didn't have to spend years trying to get this straightened out like many people I have been reading about on these boards.
Looking for an LLMD in WA State, Seattle area please. Thank You.
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Welcome - am breaking up the text for easier reading for many here -
posted
Just curious - do you know what prompted a second test to be done when she didn't order it, and also what these tests were?
Posts: 13117 | From San Francisco | Registered: May 2006
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.
Most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
" Woke up April 10th with migraine accompanied by intense ringing and pressure in ears, dizziness, slurred speech and multiple vision issues that sent me to the ER. Ruled out stroke etc. recovered, and was sent home."
That happened to me January 17, 2013. Mine lasted 2 months of the slurred speech, bells palsy, and the alzheimers like symptoms (I was 30 at the time). I was sent home also. Jerks...
It was like a switch flicked, and my brain took a nose dive. But I found a great doc and just over a year later most of my neuro symptoms are gone, just now working on the body ones. So treatment with the right doc DOES help
Hope you can find a LLMD in Washington state right away and start treating.
Neuro lyme is like a tornado that destroys ones life. The quicker you can find an LLMD, the better, especially for neuro lyme.
So glad your wife and you did your own research and didn't listen to that first doc.
If you cannot find one in WA state, there is a really great neuro lyme doc (actually 2), just over the line in British Columbia.
Just PM me if you are in a pickle, and I will give your their contact info.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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