posted
Recently diagnosed with Lyme. I had my first visit yesterday with infectious disease Dr. Worst experience ever!! All my tests have come back positive. She wants me to take another 4 weeks of antibiotics and thats that. Basically she told me all my symptoms are in my head and she does not believe in chronic lyme. Also she suggested I don't get any info from online because its all bull. So here I am! lol
Posts: 1 | From West Boylston | Registered: Sep 2014
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You've come to the right place. This is where people actually GET HELP!!
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease and its complex treatment! Stay away from Infectious Disease docs!!
The "It's all in your head" is a very common "explanation" given by doctors who can't figure out what is wrong. Many here have experienced that nonsense!!
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
Posts: 8981 | From Illinois | Registered: May 2006
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Nancy2
Frequent Contributor (1K+ posts)
Member # 95
posted
PM Sent!
Posts: 1487 | From New England | Registered: Oct 2000
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