LymeNet Flash: need lyme literate dr in eastern ct immediately!!Plus help me!

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » need lyme literate dr in eastern ct immediately!!Plus help me!

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Topic: need lyme literate dr in eastern ct immediately!!Plus help me!

cheyenne soja
Junior Member
Member # 46486

posted

I am 24 and live in eastern ct. I've had lyme for about 6 years now untreated and I really need help with finding a lyme literate dr in my area. I have 2 daughters, 5 and 3 and they constantly see me in pain,and are worried. I have always been,active and I am the only income for me and my children.

I recently have developed ceptus in mostly all my joints. If I don't find a dr soon I don't think I,can live like this for much longer. I'm so sick of being mis diagnosed with fibro or mtfth autoimmune disease or bursitis. Someone please help me before it's too late. [URL=][/URL]

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(Breaking up the paragraph for easier reading for some here)

[ 08-18-2015, 10:14 PM: Message edited by: Robin123 ]

Posts: 1 | From ct | Registered: Aug 2015 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

I sent you some information. I pray you will find someone who can help you!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96223 | From Texas | Registered: Feb 2001 | IP: Logged |

Robin123
Moderator
Member # 9197

posted

If you'd like to start a post in Medical Questions or General Support, we can discuss further. For example, I could discuss how taking bulk turmeric powder is relieving my muscles and joints. We're all different, the trick is to find what works for us.

Posts: 13117 | From San Francisco | Registered: May 2006 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for CT.

I am so sorry you are going through this. There is always hope, and when you get the right treatment from an experienced LLMD, you will get better.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment! I would also recommend your dear little girls be checked out, because you had untreated Lyme when you were pregnant with both of them.

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. You need to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/ConnecticutLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/connecticut.html

http://www.lymenet.org/SupportGroups/UnitedStates/Connecticut/

Read the book written by Dr. H, the top Lyme-literate doctor, entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Btw - I don't know if you are using your real name to post on Lymenet, but, if you are, then you shouldn't because this is a public forum with all sorts of people on it. Read the following link which explains why:

"Please Do Not Post Your Real Name"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=011844;p=0

You would have to contact the moderators to ask how to change it.

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

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