posted
I am desperately seeking a referral to a LLMD. I live in Little Rock, Arkansas. I have been misdiagnosed and treated with immune suppressants for multitude of autoimmune diseases by a slew of doctors. I keep getting worse.
My symptoms match completely with that of Neuroborreliosis. I was lied to about ever being given a test for Lyme. Several weeks ago, after realizing that I had in fact never been tested, begged, pleaded with my latest rhuematologist for a test. After much argument and attempt at dissuasion, he ran a Western Blot.
Although my results are POSITIVE, even by the CDC standard, all of my current doctors agree that it is a FALSE POSITIVE, there is no way that I could have Lyme (it doesn't exist in this state). This feels like some type of crazy conspiracy. Can someone please point me in the right direction?
Posts: 1 | From United States | Registered: Jan 2016
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posted
Welcome to Lymenet! PM sent for MO & Louisiana.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are. I don't know of any in AR.
Most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
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