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Have severe Tick-bite (2 bites) symptoms since 10-3-2015. Condition getting worse while taking Doxycycline. Tick-bite site on legs Rash looked like STARI. Severe sudden swelling and stiffness of both lower legs, ankles, and feet. Frequent severe pain and cramping of lower extremities after lying flat and sleeping for about 30 minutes. Sudden severe muscle weakness in back of neck (difficult to keep head in natural upright position - wants to drop down to downward-looking position. Now, abnormal high resting Heart Rate of 110 beats per minute.
Posts: 1 | From Houston, TX | Registered: Feb 2016
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
I don't know if you are able to travel, but please read the following about LLMDs and Texas which was recently posted about TX:
"Texas is not a great place to find a good Lyme doctor. Texas threatens its Lyme doctors and gets them to move or stop practicing without notice.
Then, if they start up again a year or so later, they do it to them again. So, there really are few Lyme doctors there and no top notch ones.
Because of the sorry state of affairs in Texas, many folks from Texas are coming to the D.C. area for testing and treatment for Lyme disease and it's co-infections.
Everyone is very happy with him and he follows the Burrascano protocol. Burrascano was the Lyme Disease pioneer and the #1 Lyme doctor in the world before he retired a few years ago. Patients came from every country to be treated by him.
The doc I recommend can see you in a few days and I don't think you would regret it. After the first in person visit, you can do telephone or Skype appointments with him monthly. So, there would be little travel involved, only a few times per year.
At least half of all Lyme patients travel out of state for their care. The doc is the key to the diagnosis and for getting rid of this horrendous disease. I can't emphasize that enough-the doc is the key.
This is what I wrote to another Texan in Sept. Look at the following thread to see all of our discussion:
Btw - please break up your posts into 2-3 sentence paragraphs, because there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this, click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
Posts: 8981 | From Illinois | Registered: May 2006
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